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Thread: Anyone in Atlanta?

  1. #1
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    Default Anyone in Atlanta?

    Hi,

    Is there anyone with Wegener's GPA in Atlanta, Georgia, USA who would be interested in meeting up?

    Jeannette

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    Default Re: Anyone in Atlanta?

    Hi Jeannette,

    I am in Jacksonville/ St. Augustine area, so not very very close. Still, interested in meeting up.

    Kathy

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    Default Re: Anyone in Atlanta?

    Hi Kathy,

    Thank you for responding. I have family in Florida. Maybe, next time I go down to visit, I can call you to see if it's convenient for you to meet. Or we could meet half way?
    Not sure where half way would be. Have to look it up. Do you go to the Mayo clinic in Jacksonville for treatment? Do you have a Dr there that's good and experience with Wegeners?
    BTW, a little background on me. I am 55 and have two grown up daughters who are 24 and 27. Had been healthy all my life until last year. Started with a walking pneumonia or bad lung infection supposedly. Although the Cleveland Dr. I went to see said that was not pneumonia but the disease starting. Anyway, I am on my 2nd RTX infusion. Had the 2nd bc the blood markers were slightly elevated and I was starting to feel like shit again with a log of joint pain. Wont feel the benefits of this infusion for several weeks or maybe months. In the meantime back on prednisone (low dose) and taking lots of Gabapentin, nortriptiline and sometimes lyrica for my neuropathy. It attacked my connective tissue in my extremities and left me with bad neuropathy in my feet. Sometimes it's hard to cope with the nerve pain/discomfort but I manage with those medications.

    Jeannette

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