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Thread: Searching for anybody that has connected their WG to vaccines.

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    Default Searching for anybody that has connected their WG to vaccines.

    I realize that it is recommended by our doctors that we get the flu vaccine. There are however a certain subset of weggies that have had very bad things happen to them when taking vaccines. I know Marta and myself have a history of adverse reactions to vaccines. I'm searching for anyone else in this subset of weggies. I'd like to compare notes. Very shortly after getting vaccines, I had either infarcts or strokes and also the onset of my Wegener's.

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Nope. I don't have anu idea what caused my Wegeners but I'm pretty sure that vaccines haven't harmed me.

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    I am pretty convinced the flu vaccine of 2011/2012 triggered our daughter's WG. She had a genetic predisposition to AI (which we were unaware of at the time) and getting the flu (which the vaccine of course tells your body you need to fight) can lead to an onset of WG. She only had the vaccine once (until she turned 18. Now she chooses to get it #TeenRebellion lol) I am not the only parent of a pediatric-onset Weggie to believe our child's WG was triggered by a flu vaccine.

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Was it a live vaccine or a killed vaccine?

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    My Dr. told me NOT to get any live vaccines. In the last 6 yrs I have got all flu, shingle, pneumonia, pvc 13 shots with no problem.
    Remember all of us respond differently to to things. Sometimes with my meds, I feel like I have had to just jump into the water and see if it is hot or cold. No one can tell me how it will work or not work. This is all I can add to your question. Someone here will probably have a more direct answer to your question.

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    I’ve gotten a flu shot every year for the past 30+ years with no issues. I got the pneumavax last year and the previous versions of pneumonia vaccine since 2011, also with no problems. I got the shingles vaccine when I was 60 (now 71) and that went ok. My rheumy at Cleveland Clinic recommends the annual flu shot.

    All I know is that dead virus vaccines are ok, but live virus ones are not...
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Quote Originally Posted by John S View Post
    Was it a live vaccine or a killed vaccine?
    For our child and for at least one other ped-onset family it was a killed vaccine

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    I'm not really looking for advice from people who have had no issues with vaccines. It'll just gum up the thread. Most of you, obviously, have had no problems. This isn't an issue of live versus dead vaccines. This is about a very rare subset of weggies that react to most vaccines, both dead or alive.
    Last edited by crowneagle; 11-12-2017 at 11:51 PM.

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Quote Originally Posted by whatthewhat View Post
    I am pretty convinced the flu vaccine of 2011/2012 triggered our daughter's WG. She had a genetic predisposition to AI (which we were unaware of at the time) and getting the flu (which the vaccine of course tells your body you need to fight) can lead to an onset of WG. She only had the vaccine once (until she turned 18. Now she chooses to get it #TeenRebellion lol) I am not the only parent of a pediatric-onset Weggie to believe our child's WG was triggered by a flu vaccine.

    I'd like all of us to get together, so that we can compare notes. I also had a very bad reaction to the 2011/2012 flu vaccine.

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    http://www.wegeners-granulomatosis.c...ggren-254.html
    http://www.wegeners-granulomatosis.c...continued.html
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on"
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you

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