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Thread: Searching for anybody that has connected their WG to vaccines.

  1. #11
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    Default Re: Searching for anybody that has connected their WG to vaccines.

    I read they have developed a new vaccine for singles that is safer for us people with poor immune systems but it won't be available till next year.
    Knowledge is power! Wisdom is using it to make good decisions!

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Just something to consider while discussing live vaccines vs dead vaccines.

    The live ones, absolutely stay away while on WG treatment (immune suppression) because a live vaccine can do really bad things, up to and potentially including death.

    The dead vaccines, are not imminently dangerous, but just consider what their job is. Their job is to jolt the immune system into a response to an inert virus, mixed with adjuvants (additives designed to put your immune response into overdrive) so that you develop an antibody.

    We are barely managing treatment for autoimmune diseases because we know so very little about the immune system, yet it doesn't strike anyone as odd that we're OK going in there and stirring the hornet's nest with new and spanky vaccines, and crossing our fingers for the best. If you think the science, and subsequent reporting behind vaccines is integrous, think again.

    My message to anyone about this topic is, don't go in blind. Educate yourself. Step out of your comfort level, and read some research on the other side of the debate from where you stand. I do. I want to see what everyone is saying, whether I agree with them or not. I want to approach the subject contextually, and I think everyone should. It's too bad we live in a culture where healthcare is abdicated to healthcare professionals, and so many people want the easy way out by just getting a pill or a jab in hopes of a quick fix. This is, in my opinion, is our biggest roadblock to moving forward. (My anthropology degree trying to sneak out.)

    Peace out everyone. Best of luck with your/our choices.

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Quote Originally Posted by crowneagle View Post
    I'm not really looking for advice from people who have had no issues with vaccines. It'll just gum up the thread. Most of you, obviously, have had no problems. This isn't an issue of live versus dead vaccines. This is about a very rare subset of weggies that react to most vaccines, both dead or alive.
    I think most of my doctors are aware that vaccines can cause a bad reaction in some people or at least some of the time. The best predictor of this is if you had a bad reaction to a vaccine in the past.

    Also vaccines tend to become less effective as you age since your immune system becomes weaker. The same is true if you have diabetes or other disease that weakens your immune system and certainly for those of us who take drugs to suppress our immune system.

    They ask me if I ever had a bad reaction to any vaccine. The benefits of a vaccine are likely to be lower for me due to my weak immune system so they weigh this against any risk of bad reaction. For me the benefits are iffy or at best uncertain due to my weak immune system but since I have no history of bad reactions they also assume there is little risk to me from the vaccine. So they advise me to take a flu shot or pneumonia shot even if it might not help me much. If I had a history of bad reactions to a vaccine they would not give me the vaccine.

    Also things like a flu shot are sort of a crap shoot since no one knows for sure what flu type will be most prevalent in any given year but they need to guess and make the vaccine months in advance. If they guess wrong the benefits of the flu shot may be rather minimal.

    Like everything else related to your health care it is important to know the percentages but it is most important to know your own history and how you generally react to various meds or treatments since that is most important in deciding what is apt to be best for you.
    Last edited by drz; 11-25-2017 at 08:30 AM.
    Knowledge is power! Wisdom is using it to make good decisions!

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    Bing505z is offline Banned for being a douchebag
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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Quote Originally Posted by crowneagle View Post
    I'm not really looking for advice from people who have had no issues with vaccines. It'll just gum up the thread. Most of you, obviously, have had no problems. This isn't an issue of live versus dead vaccines. This is about a very rare subset of weggies that react to most vaccines, both dead or alive.
    Exactly! LOL Not sure if it is a failure to communicate...examples of the failed American education system..you know..those who were left behind.....were kicked in the head by a mule or just plain stu---...

    But anyways....

    Crowneagle, I can talk to you outside of this forum on what you are asking. It is rare, but vasculitis (GPA and other forms) has been documented following vaccines (including influenza vaccination)...there are many studies on the net to read about.

    "influenza vaccine should not be repeated for patients with ANCA-associated vasculitis following influenza vaccination or with post-influenza vaccination-reactivated IgA vasculitis"

    Here is something to chew on:

    https://www.ncbi.nlm.nih.gov/pubmed/28521688

    Those of you who want to argue, make statements of "well for 30 years" blah blah blah....Save it for someone else and take it up with those who do the research....lol

    Happy New Year!

    Cheers!!!!!

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    The research recommendations is consistent with what my treating doctors have told me about getting flu or other shots. If you have had a problem after them then you should not get anymore of them.
    Knowledge is power! Wisdom is using it to make good decisions!

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    I'm glad to see this post, and the link. I have been getting a flu shot every year, and actually received the pneumonia shot less than a year ago. And, yes, my Doctors said, just don't get the live vaccine, because of my suppressed immune system....soooo.....Thank you Bing!!
    Life is a Gift~ Lilly

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Quote Originally Posted by Bing505z View Post
    Exactly! LOL Not sure if it is a failure to communicate...examples of the failed American education system..you know..those who were left behind.....were kicked in the head by a mule or just plain stu---...

    But anyways....

    Crowneagle, I can talk to you outside of this forum on what you are asking. It is rare, but vasculitis (GPA and other forms) has been documented following vaccines (including influenza vaccination)...there are many studies on the net to read about.

    "influenza vaccine should not be repeated for patients with ANCA-associated vasculitis following influenza vaccination or with post-influenza vaccination-reactivated IgA vasculitis"

    Here is something to chew on:

    https://www.ncbi.nlm.nih.gov/pubmed/28521688

    Those of you who want to argue, make statements of "well for 30 years" blah blah blah....Save it for someone else and take it up with those who do the research....lol

    Happy New Year!

    Cheers!!!!!
    You guys are awesome. Great link Bing. Thanks.
    It's so nice to not have to argue about what went down in your own case with people who were clearly not there, and just show them the science.

    Absolutely goes with everything that I keep saying and keep getting shut down for by the positional bunch, too scared to come out of their comfort zone bubble.
    I don't see it now (so they might have taken it out,) but after I made the connection in 2011, I went back and looked at the insert for the H1N1 vaccine, and on page 7, buried deep within in very small print, is a warning that Vasculitis is a rare but possible side effect of the vaccine. That's too much to handle for some though.

    My vasculitis specialist also believes that the vaccine was my trigger and supports me all the way.

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Any info on Tetanus and Vasculitis?

    Ed.

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    Bing505z is offline Banned for being a douchebag
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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Quote Originally Posted by marta View Post
    You guys are awesome. Great link Bing. Thanks.
    It's so nice to not have to argue about what went down in your own case with people who were clearly not there, and just show them the science.

    Absolutely goes with everything that I keep saying and keep getting shut down for by the positional bunch, too scared to come out of their comfort zone bubble.
    I don't see it now (so they might have taken it out,) but after I made the connection in 2011, I went back and looked at the insert for the H1N1 vaccine, and on page 7, buried deep within in very small print, is a warning that Vasculitis is a rare but possible side effect of the vaccine. That's too much to handle for some though.

    My vasculitis specialist also believes that the vaccine was my trigger and supports me all the way.

    Marta....Happy New Year

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    Default Re: Searching for anybody that has connected their WG to vaccines.

    Back at ya bro.

    May 2018 be the best one yet.


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