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Hello! Just joined the support group a few days ago. Here is my story
Hi everyone! My name is Natrice. I was diagnosed with WG in 1996-1997. I was a teenager living in Australia at the time. My initial symptoms were very vague and it was thought I had a lacrimal gland tumour. Of course it turned out not to be so simple. I was placed on methotrexate & prednisone. I moved to Missouri in 2001. Since then he disease process has progressed & become sometimes difficult to deal with. I stopped responding to methotrexate & was placed on imuran. The imuran was initially terrible and would make me vomit until I got it all out. Drs forced my body to accept imuran with anti emetics & imuran worked well for several years. I then started to have chronic sinus infections that wouldn’t clear up, my joints swelled (“inflammatory arthritis”) & were painful. I have vasculitis induced reynauds. I was placed on cellcept. But cellcept unfortunately never worked. I then went on rituxin last year. My joints are still swollen. I was able to taper off prednisone... for a whole week. I am very lucky however, I do not have lung involvement. My kidney function is good though I have hematuria. Anyways.. that’s my condensed story of the last 20ish years.
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Re: Hello! Just joined the support group a few days ago. Here is my story
Hi Natrice and welcome.
Gosh you have been a survivor for such a long time. You are amazing.
It's a shame you are not still in Melbourne. We had a lunch on Monday and 21 people turned up. 12 of them have WG. It was a great afternoon.
Andrew, surely Aussies don't have accents - everyone else does
Keep Smiling
![biggrin1](images/smilies/RpS_biggrin.gif)
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
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Re: Hello! Just joined the support group a few days ago. Here is my story
Thank you both for your kind words. I actually lived in Wagga Wagga-but that’s only 6 hours or so away from Melbourne. It would have been fab to join you all for lunch mishb! As for your question Andrew-I do not have an Aussie accent. To confuse you just a little more... I’m a military brat. My parents met while my father was on R&R in Oz. They got divorced so I didn’t move to Australia till I was 12. Clear as mud?? Haha. To answer your other question, I have been on Rituxin for a year. It isn’t helping with my joint pain and my ANCA is still positive. Weird. But I do feel better on it.
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Re: Hello! Just joined the support group a few days ago. Here is my story
Forum Administrator
Diagnosed March 2003.
Currently but not permanetly residing in Canberra, Australia.
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Re: Hello! Just joined the support group a few days ago. Here is my story
![Quote](images/misc/quote_icon.png)
Originally Posted by
andrew
Oh...do you still have an Aussie accent?
![Smile](images/smilies/smile.png)
Correction: Do you still have the COOL Aussie accent?
MikeG-2012
"You never know how strong you are until being strong is the only choice you have"
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Jaha liked this post
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Re: Hello! Just joined the support group a few days ago. Here is my story
![Quote](images/misc/quote_icon.png)
Originally Posted by
Alysia
I am afraid that if I will meet for real, one of you, beautiful aussies, I will not be able to understand a word..
Of course you will, Aussies don't have accents, everyone else do
Keep Smiling
![biggrin1](images/smilies/RpS_biggrin.gif)
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
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Re: Hello! Just joined the support group a few days ago. Here is my story
Welcome to the best group of Weg's people ever. I am wishing you all the best with your treatments.
Jana
![thumbsup](images/smilies/RpS_thumbsup.gif)
Do not fear anything, just do it afraid!
It does not matter how slowly you go, as long as you do not stop!
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