Hi all,

My blood tests haven't come back yet, but my creatine levels are normal. My doctor allowed me to start prednisone because my tongue and eyes are becoming enflamed, but I don't know if he'll let me stay on it. He wants a proper diagnosis before treatment but I'm really afraid that something very bad is going to happen if I have to sit around untreated for who knows how long. The pain meds I was prescribed don't even help anymore and it seems like every day a different body part becomes inflamed with pain.

I am scheduled for a lung biopsy but I'm praying I won't need it. I couldn't sleep last night because the inflammation in my lung/shoulder hurt so badly. Either way I'm ready to do whatever needs to be done.

The sinus biopsy was unnerving but not painful. I'm just really nauseous and tired and in a lot of pain right now.

Thank you all for being so supportive and encouraging, I love you all. Going to get through this and be stronger.