When I'm sick with Wegeners I often question my sense of illness. I frequently doubt it is happening. I'll say , Ow! with a headache, eye irritation or be surprised when my nose gives me a crop of caterpillars. And then I'll say. "I'm not doing that bad". When I call the Doctor I feel like a wuss.
I just had a flare up and a friend that also has GPA told me to insist in care ASAP. I'm glad that he did. This disease causes permanent damage to vital organs. I know that I don't function nearly as well as I did before the onset. I'm afraid of flares causing additional permanent damage.

Keep of pushing for your best care!