User Tag List

Likes Likes:  164
Page 6 of 6 FirstFirst ... 456
Results 51 to 53 of 53

Thread: Pred Uglies

  1. #51
    Join Date
    Feb 2013
    Location
    Israel
    Posts
    3,626
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Pred Uglies

    Quote Originally Posted by Susan55 View Post
    Hi Alysia
    I'm just wondering if I should increase the meds or wait until I go to the the lab (tomorrow) the Dr. wanted to see if med's were working or not. Not sure if it would show up in blood test if inflammation is going down or not. I don't know what blood test whould show that or could show that. Still learning what each blood test will show the Dr.
    I am sleeping so much better on a lower dose of pred but symptoms are worse. OH what to do. I'm think wait until after blood work tomorrow and then increase it. shouldn't I get going down by 5mg week? not daily right? I also see my face seems fuller, darn.
    Love the pictures so much, it so just nice knowing all of you are here with so much support for us new people (everyone here) and I just want to give all of you big hugs.

    My son leaves tomorrow Then back to being alone. Having him here I think is why I am finally sleep a bit more. Having way less anxiety with him here.
    Hi Sue,
    It can be a good idea to do the labs first although I am not sure how much difference it can show with the different doze of pred... ??
    maybe anyone else around knows ??

    You reduce in steps of 5 mg every week and according to your feeling. Listen to your body like you did with the pred when treating the COPD. Its the same pred.
    Are you on 20mg now ? Maybe you dont have to go back too high, maybe you can just add 5mg (total 25) and see if it helps ? Sometimes a bit more is all you need to stabilize yourself.
    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    http://www.wegeners-granulomatosis.c...ggren-254.html
    http://www.wegeners-granulomatosis.c...continued.html
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on"
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you

  2. Likes Jaha liked this post
  3. #52
    Join Date
    Feb 2013
    Location
    Israel
    Posts
    3,626
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Pred Uglies

    My update: Sorry to disapoint.. I quit. The try to take 4mg pred for one day, made me again that specific CRAZY headaches which dont respond to pains meds. I know it was the reaction for the lack of pred because my ears and joints also ached. It lasted about day and half. So that's it. Me and my 5mg pred for life. At least I sleep well and dont gain weight. The cataract will still be there and I try to excercise to keep my bones.
    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    http://www.wegeners-granulomatosis.c...ggren-254.html
    http://www.wegeners-granulomatosis.c...continued.html
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on"
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you

  4. Likes mishb, drz liked this post
  5. #53
    Join Date
    Nov 2010
    Location
    ~46N1165W
    Posts
    1,840
    Post Thanks / Like
    Mentioned
    9 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Pred Uglies

    Sue, Please remember that none of the people on this forum are doctors and we can't give advice on what you or anyone else should do with regard to drugs. All we can do is tell you what our individual personal experiences have been and then you have to take what you can from that. Always follow your doctor's advice.
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

  6. Likes Dirty Don, seied, Jaha, MikeG-2012, drz liked this post
Page 6 of 6 FirstFirst ... 456

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •