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Thread: First rituximab infusion

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    Default First rituximab infusion

    I'm having my first infusion of rituximab today! Still within the first hour so we will see how it goes. I'm very hopeful that it will give me superpowers. I understand it will take up to eight weeks to kick in. Looking forward to some good days sometime in the near future. Any pointers or tips are welcome!

    I'm concerned about losing hair. Taking biotin and collagen sporadically and will try to do so more consistently. Hoping to lower preds asap but will wait and go slowly once I feel good.
    Just when the caterpillar thought the world was over, she became a butterfly.
    - English proverb.

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    Doses of folic acid (OTC) will curb hair loss. Best to you on the RTX.
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


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    I don't know much about all these med's yet to give feedback. But one day at a time. Do you get another treatment of the rituximab? or just this one to see how it goes?

    Hugs

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    Quote Originally Posted by Susan55 View Post
    I don't know much about all these med's yet to give feedback. But one day at a time. Do you get another treatment of the rituximab? or just this one to see how it goes?

    Hugs
    Some docs Rx 2-4 infusions at weekly intervals. I started out with 4 weekly infusions. I now get one a year. I'm in remission since 2014.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    Hi Pete

    That is great just once a yr now and in remission. So happy for you!

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    Thanks, Don! I'll add folic acid to my list. The nurse said she hasnt had anyone lose their hair from it but better safe than sorry.
    Just when the caterpillar thought the world was over, she became a butterfly.
    - English proverb.

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    Remission is the dream! I'm so glad you're feeling well...
    Just when the caterpillar thought the world was over, she became a butterfly.
    - English proverb.

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    I get one more infusion in two weeks, then six months until the next round of two treatments. They said it will take a couple of months to kick in. Now that i know i can tolerate it, I'm really hopeful that it will make me feel better. I'm also hesitant to get my hopes up too much until I see how it works for me, because we're all so different. So far, I've been really sleepy but not sick. The nurses told me I'd feel flu-ish. I realized I feel no worse because I'm used to pretty much always feeling flu-ish. We will see how today goes. I'm so glad my parents are here helping out. I can sleep when I need to and they will feed amd water my kids.
    Just when the caterpillar thought the world was over, she became a butterfly.
    - English proverb.

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    Best of luck with the infusions. Rituximab has been wonderful for me and seems to keep me in remission. As far as hair loss, I was bald before I started so no real effect on my current hair situation

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    Beautiful Lisa, rtx is not causing hair loss as far as I know. (Ctx does).
    I do have some hair loss but its because of my second disease (colitis) and out of poor nutrition.
    I am glad it went well for you. Each one reacts in a different way. I get very tired after, but some friends not at all. It is true that the average time of getting better is around 8 weeks, but for some it can help faster. Or take longer. I pray it will work fast and perfect for you.
    In the first month right after be careful not to be near sick peple.
    Just rest and let it heal you.
    Hugs & much love 💜💙💚💛❤
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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