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Thread: Follow up of my stomach issues

  1. #11
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    Thanks for the update, glad to hear it's slow moving.
    Diagnosed April 1995

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  3. #12
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    Thanks for the update Jana. We keep on praying.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  5. #13
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    Sounds like it is good that it is slow growing and that they at least found it so it can be treated. (sounds like wegs doesn't it?)

    Hang in there Jana!!! Thoughts and prayers coming your way!!
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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  7. #14
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    Just catching up with this Jana, sorry to hear of this. I'm sure everything will work out. Will be thinking of you.
    Dale
    Dx Aug, 2009 Remission June 2010 until 8/1/2014

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  9. #15
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    Well today is the day I have my appt with the oncologist. I am so glad that this appt is finally here. I will keep you all updated on my status.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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  11. #16
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    I'm doing pretty good. We went to Columbus yesterday and I'm a little tired. This visit went well, I liked the doctor and he ordered a bunch of tests on me. I had labs done while we were there. I have to have a Pet Scan and Ct Scan next week. I will go back to James on Sept 1st to see the Doc and a Genetics counselor. So I think they are getting to the bottom of things.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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  13. #17
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    I'm glad you have confidence in your doc at OSU. I hope treatments are tolerable and successful.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  15. #18
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    Well all the tests are completed and I will be getting some answers tomorrow 9/1. It seems strange that on 9/2/2010, I started my treatments for Wegener's. I guess it is just a random date thing, but to close to a notable date. I have already read some of my labs and one of the CT Scans(Chest). I had some elevated markers on the labs, I hope some of my medications are causing this. The Chest CT had very little excitement, few scattered calcified granulomas,thin-walled cysts and scarring in both lungs. A small intrafissural lymph node and stable elongated opacity at left lung base due to scarring. I guess we will find out what the others say and explain the ones that they already released to me. I let you all know what they found and what they will do with me.
    I am really badly overdue for my RTX infusion and am feeling it. I hope they give me the go ahead on the RTX, so I can at least get those symptoms quieted down. Please take care all! Talk with you soon.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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  17. #19
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    Hope the news is good!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  19. #20
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    Hope you get go ahead for RTX
    Knowledge is power! Wisdom is using it to make good decisions!

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