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Thread: Subglottic Stenosis - What's the recovery from the surgery like?

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    Default Subglottic Stenosis - What's the recovery from the surgery like?

    I'm newly diagnosed and know that I will have to have surgery for this. Anyone want to tell me what the recovery is like? How sore is your throat and how long are you hoarse? How long does the surgery take? (I know there's an overnight hospital stay involved). He says that he hasn't had to do a trach in over 10 years, which sounds reassuring, but that this is often the kind of surgery that must be repeated for WG patients. I don't really have a choice, I'm down to 3.5 or 4, when I should be at 7 or 8. My ENT is Lebovics of St. Luke's Roosevelt in Manhattan, who has done many of these before, and is featured on the vasculitis foundation's site.

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    Well Jan.....I had a trach put in as a precaution, so if that is the case for you then recovery is a bit longer. They kept me in the hospital for 5 days. But just the surgery to open the airway.....I have had lots of those. The recovery is very quick and easy. Godd luck to you!

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    Hi Jan, I'm so glad you posted this. I had heard of Dr Lebovics in another Wegs group but could only remember that someone in NY specialised in trach surgeries. Does he recommend Weggies have dilation surgeries with him, or just trachs?

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    Sangye - he definitely said to me that I wouldn't have to have a trach -- this would only happen in an emergency situation to save my life (for instance, I don't have to consent to a trach in the paperwork I sign for the surgery). He hasn't gone over the details of what he would do (dilation, stent, etc.) and frankly, I'm not up on the various new methods because I am new to this as well. I meet with him again on February 5 and will definitely let you know what he says. He told me that recovery time is two days with only fairly limited sore throat and hoarseness but of course never having known anyone who has had this surgery before, I wanted to ask for confirmation here. He also specializes in saddle nose surgery, which is lucky since I have both!

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    Oh-- I meant does he recommend that Weggies see him for SS, as opposed to having it done by other ENTs who see a lot of Wegs but don't do as many surgeries as him.

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    Oh, got you. Yes, he would recommend that weggies see him for this and saddle nose, of which he's done a ton, but he also had at the ready names of a couple of docs for second opinions, who presumably do quite a bit of this as well.

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    Janw, I've had the procedure done 3 or 4 times over the years by Dr. Lebovics, the recovery time is only a day or two and it's not too bad, just a sore throat, as far as I'm concerned Dr. Lebovics is the best for this procedure. Good luck.

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    JDK - That's great to hear! How long did the sore throat last -- just a day or two or long after your recovery? How frequently did you have to have the procedure done? Did you have it done at St. Luke's? What kinds of meds did they give you before/after?

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    Sorry I took so long to get back to you. The sore throat only lasted a few days, and yes it was done at St. Luke's. I don't remember what meds were used, but right now I'm on prednizone, and cellcept. I also see Dr. Carol Langford at the Cleveland clinic to keep an eye on my WG. If you need a great WG Doc, I highly recommend her. Good luck

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    I second that, I see her too.

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