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Thread: Subglottic Stenosis - What's the recovery from the surgery like?

  1. #101
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    Jlove, hi. Figured while I'm sitting here playing the wait game, once again, waiting on my advocate, id respond! I thought it was maybe a good time to end the thread to no where, for now, anyway... Jlove,no, yes, kinda? No not in stone, the way I need, but my primary is on board and trying hard. Unfortunately, there's only so much she can do, when the so called specialists I've seen, aren't at all specialists in anything weg dog related. My primary was concerned enough to get a home visit nurse, last April, that I'm still fighting on. So right now, waiting on a pulmonary doc, then also waiting on a new biopsy appointment, but doc, needs to do some seriouse jumping on this. She started jumping today... I need a diagnosis in stone, just for the pain that's coming, as I'm really not sleeping, and its killing me... I will get the diagnosis, just a question of the irreversible damage that will be done by then. Can't grow my bottom teeth, gum and bone back! So... Thankfully all the top are there!!! Haha... Oh boy, what a trip... Thank you, for asking! Take care... Deb...
    Live,love,and laugh...

  2. #102
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    its no longer a trip, its a nightmare...
    Not really.... We're pretty seasoned int'l travelers. We've had some issues overseas, but we manage quite well. No worries. I don't want to let this disease stop me from doing the things I want, so I press on. I'd hate to just stay home, sit around, and annoy everyone around me -- I annoy people enough as it is. :-)

    no, yes, kinda? No not in stone,
    Deb, I didn't realize you hadn't been dx'ed? What symptoms do you have that make you think you might have wegs?
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

  3. #103
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    Vdub, this post woke me up! Haha... Oh, sleep, why? Why no more visits? One or twice a week tease, then you're gone! Vdub, hello... Vdub, I here ya, on this, just meant if God forbid, something happened why gone and away friend you're docs... As far as symptoms, it would be easier to tell ya, the ones I don't have... I'm dead serious... I pretty much got em all, eye scleritis, and not stop problems, nose pain with slight change in shape, with bleeds. Gum teeth, bone sudden dramatic changes. Leg pain, roaming but always there, going on year four. The leg pain can be brutal, and never leaves, though some days better than others. Fatigue that just can't be worded, probably the worst one of all, cause its always there. Now roaming arm, shoulder and hand pain. Sudden ear problems, when I've never so much as had an ear ache. Hearing will go, like under water, then pop back, later? Last episode took over a day to pop, and lost a slight amount of hearing... Lung pain, started a couple months back, with pretty significant fever, though a little better than it was, and a little to me, is huge. Kidney issues, again suddenly, and protein in urine, was stable, but not anymore. Blood in urine, bah, blah, blah. All these and more happened at the same time! Right after my endoscopy. So I'm guessingi had it, and it was waiting for a stress to show itself. Actually, I know, without a question, this is what I'm dealing with. Im also the one, who put silica all over my apartment, in an attempt to prevent bedbugs! I put the wrong stuff, Vdub! Yes, I'm an idiot! I let fear get me... Live and learn, right? A very hard lesson, though... Vdub, where do you get you're avatars? Cute! Hope you're doing better... Deb...
    Live,love,and laugh...

  4. #104
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    where do you get you're avatars?
    Some I make, most are borrowed.....
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

  5. #105
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    Vdub, pretty cool... Are you an artist? I never saw avatars like this... Interesting... Deb...
    Live,love,and laugh...

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