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  1. #1
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    Default New!!

    Hi everyone! My name is Mandy and i am 19 years old, I was diagnosed with Wegeners last september and i'm hanging in there! i was told about this forum by a wonderful couple i met on the trip to chicago for the vasculitis symposium. I am looking forward to this support group!


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    Quote Originally Posted by mandy.livingston View Post
    Hi everyone! My name is Mandy and i am 19 years old, I was diagnosed with Wegeners last september and i'm hanging in there! i was told about this forum by a wonderful couple i met on the trip to chicago for the vasculitis symposium. I am looking forward to this support group!


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    Welcome, Mandy! Hope you will find friends and helpful information here! We are in it together!
    Arleta


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    ----Arleta




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  4. #3
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    I'm not glad you have Wegener's, Mandy, but since you do, I'm glad you are here! I am turning 65 this summer and was diagnosed at 58, with a couple years of symptoms before that. I'm doing pretty well, though still taking the meds. I'm glad you are hanging in there, and it might not take you as long to feel somewhat normal again. Stay vigilant and well informed, and this is the place for that, as well as for talking to those who understand what you are dealing with. I joined right before official dx, and it has saved my sanity and kept me positive, and I've made friends all over the world. Any questions, stories, or rants are welcome here, as we are a very open and caring group. I look forward to hearing more from you!

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    Last edited by annekat; 06-26-2017 at 11:09 AM.
    Anne, dx'ed April 2011

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    Welcome to the group. The symposium was excellent again this year. Best of luck in your treatment

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  8. #5
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    Glad you made it here Mandy!! It was a pleasure meeting you and talking to you and your family. I was glad that you came in that evening and sat down next to us! I know you find this family as good as I said it would be! (-8
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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    Quote Originally Posted by MikeG-2012 View Post
    Glad you made it here Mandy!! It was a pleasure meeting you and talking to you and your family. I was glad that you came in that evening and sat down next to us! I know you find this family as good as I said it would be! (-8
    so glad i met you and your wife as well


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  11. #7
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    Hey, hi! Our daughter who has Wegeners turns 19 in a few days. :-) Welcome to the forum!

  12. #8
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    So sorry you have wegs, but there is light at the end of tunnel, so hang in there. Welcome to the forum!
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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  14. #9
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    Welcome to the best place to receive great knowledge and very caring support. There is someone that is always here to answer questions and listen if you need to vent. Please take care of yourself.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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  16. #10
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    Welcome Mandy!
    Hope your diagnosis was soon after symptoms first appeared. You'll find loads of friendly, well informed people on this forum. You would really struggle to ask a question and find nobody with an answer.
    I have a bit more experience on the renal side of vasculitis than some members, so if you're kidneys are involved, I'd be happy to answer any question.
    Diagnosed April 1995

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