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In late February I gave up playing fretted instruments like guitar and ukulele because my hands were covered in Granuloma Annulare sores. Rituximab cleared them up quickly and I've been playing again since July.
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You have a great rheumatologist and she will give you the right treatment.
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Originally Posted by
John S
Good video about GPA and how it can affect one.
Knowledge is power! Wisdom is using it to make good decisions!
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My infusion of Rituximab was in May. I believe I am experiencing a flare right now. Flare is such an appropriate word for this. A week ago, I started getting the headaches again and the nasal flush started bringing up the hunks again. I'm already feeling miserable. The headaches have increased in intensity and frequency, the crusts are building faster, I'm feeling exhausted, it feels like something is chewing on the back of my eye again and the sores are starting to appear on my hands.
I put a message into Dr. Villa-Forte and now am waiting to hear back from her.
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Originally Posted by
John S
My infusion of Rituximab was in May. I believe I am experiencing a flare right now. Flare is such an appropriate word for this. A week ago, I started getting the headaches again and the nasal flush started bringing up the hunks again. I'm already feeling miserable. The headaches have increased in intensity and frequency, the crusts are building faster, I'm feeling exhausted, it feels like something is chewing on the back of my eye again and the sores are starting to appear on my hands.
I put a message into Dr. Villa-Forte and now am waiting to hear back from her.
Sounds like the beginning of a flare. I am sorry. The rtx works like a shape of normal curve which lasts about 6 months. At the edges of the curve, wg is more active. You are around the 6th month. So I guess its time for the next treatment. I am glad that you have a good dr.
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Re: Confirmed Diagnosis
I had a Rituximab treatment in October and another in early November. The symptoms are now under arrest. I do feel kind of run down and my eyes never seem as good as they were in pre-disease days. I suspect that these might be permanent conditions now. I'm adapting my behaviors to the conditions as they exist. I'm trying to enjoy every day to the max.
We took 2 grand-children, ages 4 and 11, to Disney World. I rented a handicapped scooter and it was wonderful.
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Re: Confirmed Diagnosis
My last RTX treatment was early November. The Dr. had me increase Prednisone to 30 mg. I have been tapering rapidly and am down to 6 mg now. About two weeks ago I got a rash around y armpits which has now spread to my elbows. At first I thought this might be due to the drop in humidity (Illinois heating season) or change of laundry detergent. I se that GPA sometimes has rashes associated with it and that RTX sometimes has rashes as a side effect. I couldn't get an appointment with a Dermatologist till late Feb. so right now I'm applying cortisone cream.
Could the rash be due to the rapid tapering?
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Re: Confirmed Diagnosis
Originally Posted by
John S
My last RTX treatment was early November. The Dr. had me increase Prednisone to 30 mg. I have been tapering rapidly and am down to 6 mg now. About two weeks ago I got a rash around y armpits which has now spread to my elbows. At first I thought this might be due to the drop in humidity (Illinois heating season) or change of laundry detergent. I se that GPA sometimes has rashes associated with it and that RTX sometimes has rashes as a side effect. I couldn't get an appointment with a Dermatologist till late Feb. so right now I'm applying cortisone cream.
Could the rash be due to the rapid tapering?
We have found that rashes can be associated with weg flare up. It also may be a delayed reaction to the rtx. The doctors were not able to confirm by us.
Wishing and hoping that you feel better.
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