You are in the best of places and with a top doctor. I am wishing you all the best with your treatments.
You are in the best of places and with a top doctor. I am wishing you all the best with your treatments.
I had my first infusion of Rituximab today. Everyone at thr Cleveland Clinic worked as an efficient team. I cant sleep tonight. Maybe that is due to taking 30 mg of Prednisone and also having an injection of it at the start of the procedure. I'm also experiencing some pain in the elbow and shoulder that they used. This may or may not be related.
Wishing you well. Keep us posted please.
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I had lung and ear involvement- dx on 8/1/16. I am treated in Boston. I started at 60 mg pred and ritux infusions every 4 months. I'm tapered down to 2.5 mg pred now and my disease is in remission I did catch bronchitis 4x and the flu once since Jan due to immune suppression. Wishing you the best!
Trust in the Lord with all your heart
and lean not on your own understanding;
in all your ways submit to him,
and he will make your paths straight.
Proverbs 3: 5-6
I'm allergic to th sulfa in Bactrim so tomorrow I start taking a liquid antibiotic that costs $1000 for 3 months worth. Luckily insurance picks up $750 till I get in the donut hole.
Good news. Headaches have caused me to take 1 Extra strength Tylenol every four hours for the last several months. I haven't had a bad enough headache all day. Also, I drove most of the way home from Cleveland to Chicago today. Last time, me eyes only let me drive a 1 hour shift.
Great news, John!! I hope your improvement continues!!
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
I want to emphasize again how nice everyone at Cleveland Clinic is. They kept asking what my birthday is, I think they are getting me something.......
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