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Thread: Confirmed Diagnosis

  1. #71
    Join Date
    Mar 2012
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    Suburban Columbus, Ohio, USA
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    Default Re: Confirmed Diagnosis

    Here’s hoping (and expecting) your prayers will be answered. As Thanksgiving approaches, I remain thankful, especially my former PCP Dr Steven Draeger (retired) and Dr Villa Forte. I was in the initial stage of disease onset when I first saw Dr Draeger. He, like your step daughter, quickly realized I was very sick, but also that he didn’t know how to treat me. A week in the hospital at Ohio State yielded the GPA diagnosis and a treatment regimen. After about 18 months, I found this forum and learned that a worldwide center of excellence in vasculitis at Cleveland Clinic was within reasonable driving distance. I was allowed to self refer to Dr Villa Forte. She’s the best!! I look and feel like I did pre-GPA.

    You’ll get there!! Just keep on keeping on...
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  2. Likes John S, me2, Masha, MikeG-2012, Alysia, mishb liked this post
  3. #72
    Join Date
    Mar 2017
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    Default Re: Confirmed Diagnosis

    I just got back from Cleveland Clinic. Dr. Villa-Forte ordered one in fusion of 1000 units of Rituxin this time. Every previous time has been two treatments of 1000, two weeks apart. She told me that I'm set to go to 500 units in 6 months. One of the nurses in the infusion center said she remembered what I was like the first time I was there and that I could be a poster boy for Rituxin.
    God bless Dr. Villa-Forte and the Cleveland Clinic. I could choose to get my treatments in Chicago now and save 1000 miles of driving but I like this Doctor. She keeps up with all of the latest studies on treatment protocol and really, really, really knows her way around this disease.

  4. Likes Pete, bobjannj, Masha, Dirty Don, Alysia, mishb, Jaha liked this post
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