Originally Posted by
lovetoswim
I read that life expectancy after diagnosis of Wegs is 2 years without treatment. If that is true, it doesn't seem possible Wegs could be dormant for years, is it? I wondered if my prior issues were Wegs-related, but that was 10 years ago (vertigo for a year), and Lyme's disease.
Wegs is often NOT diagnosed until it gets very serious and life threatening even though in hindsight many people can recall symptoms over the past several years. But these symptoms are often misdiagnosed and thus not treated correctly. Such cases may have simmered or smolder for awhile before it flared enough to get diagnosed and treated appropriately. Then those symptoms usually disappear. My joint pains, foot pain, nasal crusting and bloody noses all improved or disappeared after my diagnosis and correct treatment. If I had not received appropriate treatment after my diagnosis I would have died in a few weeks. Even with some very aggressive treatment my survival was very iffy for several weeks.
My Weg expert at Mayo said my history of frequent sinus and ear infections may have predisposed me to getting Wegs many years later.
My hearing loss was permanent but after getting a BAHA my speech returned to near normal and the tinnitus mostly disappeared.
Knowledge is power! Wisdom is using it to make good decisions!
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