I have been sick for 14 months. it started with massive headaches. I was hospitalized when I realized I was experiencing double vision. The initial diagnosis was sixth nerve palsy. I went home but a week later I was back. The double vision was gone but my right eye swoll so much that it was touching the lens of my glasses. The new diagnosis was orbital pseudo tutor.
At this point I was put on Prednisone. After a few weeks, the soreness in my eyes and headaches were overwhelming. The local eye Doctor said that he couldn't help me. He told me to go to Loyola Hospital in Chicago. The whole time I have been fatigued. Lots of bloody noses.
All of the Loyola Doctors were fantastic. I had a full battery of blood tests . Negative for ANCA but positive for Lyme in the Elisa test. The Lyme Western Blot test has been run three times but I always show up negative.
One of the Loyola eye doctors said that my symptoms were like Lyme patients she had seen on the East coast. The Infectious Disease people would not treat me for Lyme.
Around April or May I started blowing huge buggers out of my right nostril. (Yes I saw the thread on huge buggers)
I had cataract surgery in October, both eyes. I'm pretty sure that was due to the Prednisone.
Around November, sores started appearing on my hands. I saw two dermatologists and had two biopsies. The second pathology report said the sores were consistent with Granuloma Annulare. They have continued to grow and multiply. Recently, arthritis has started into my hands as well.
In January the ENT did sinus surgery on me. She tolf the Rheumatologist that it appeared I had Wegener's growths inside. The biopsy for this said tat Wegener's could not be excluded. It also said that infection could not be excluded.
The Rheumatologist has diagnosed me with Limited Wegener's. I have an appointment at Cleveland Clinic with Dr. Alexandra Villa-Forte on Wednesday.
Like I said at the start, I'm old and wrinkled. I hope to get older and wrinkleder.
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