Desperately seeking med ideas.

[crowneagle]

Alysia Weggie suggested that I post my questions here. So, here is my situation. I've got an untenable situation where every drug they try me on progresses my disease, rather than arrest it. My doctors are at their wits end. Cellcept was the worst but even Rituxan has had it bad side effects. I've also have LCV as a skin manifestation of Wegener's. So, they tried me on Colchicine but that turned out almost as bad as the Cellcept. The only drug they are offering is Imuran but it scares me to death that it will be like the others. Cytoxan is the only drug that put me in a short remission. But, you know the long term risks of that.

Has anybody ever used Arava or Gusperimus(DSG)? These are two drugs the doctors haven't mentioned to me. Has anybody ever had a drug make their disease worse?