I guess, Jaha, that your message is king of good news or at least slow progress. What does that get? A half smile?
Jeannette, you and I are on some of the same drugs. The docs just up'ed my gabapentin to 1800mg/day. As for the Tramadol, I'm taking 300mg (sometimes 400mg/day). One or more of my drugs makes me bit dizzy and very tired. Even though I'm tired during the day, I often can't go to sleep at night and have to take ambien, which only "kind of" works.
My WG is extremely rare -- it attacked my pituitary which is a 1:10,000,000 occurrence. Recently, however, I have gone into the super rare thin air zone. WG is getting involved with my autonomic nerves and knocking out critical functions. So far, it has affected the phrenic nerve and the vegus nerve. Both are pretty bad and caused some serious issues. My PCP told me today that he is sending me to Mayo in Rochester. It will be interesting to see what they come up with.
I haven't been on the forum much lately. Usually, that means I'm not doing to well or I'm doing super, super well. In this case, I haven't been doing to well. Not sending messages on the forum doesn't mean I'm not looking. I check some admin things pretty much every day and then scan the messages to make sure everyone is being nice. Its and easy job because we have such good members. Good luck to everyone as we struggle with this disease.
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