Merry Christmas to all of you who make this forum what it is! Thanks for another year and lets hope next year is just as good!
Merry Christmas to all of you who make this forum what it is! Thanks for another year and lets hope next year is just as good!
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
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Merry Christmas to you, Vdub!! Thanks to you and Andrew for our lifeline!!
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
Merry Christmas to all and lets hope next year is BETTER
Life isn't about how you survive the storm, but how to dance in the rain !
Merry Christmas and/or Happy Holidays, everyone.
I'm with you Deb, bring on 2017
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
I am looking for a doctor in the Huntsville, Al. area. My original Weg. Dr. has retired and my family Dr. doesn't know anything about Weg. I fear I am relapsing. I can ask for an ANCA but do want to have someone who knows about Weg. so I don't have to go through what I had to the first time.
If you know someone please let me know. Thanks, Joyce
Huntsville is pretty good sized and wegs isn't all that super rare. I think what I would do is call several rheumies in the area and ask them about how many wegs patients they have. That should give you a pretty good indication. Sure beats driving to Birmingham or Atlanta.
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
Forum Member Map -- world map for you to put a stickpin of where you are located....
Thank you, I was the first Wegener's diagnosed in Huntsville. It was pretty rough. The Dr. I had then is about to retire. Thank you for your help and I will keep looking. I do know there are some Wegener patients with the rheumatologist I saw. I am no longer with him. I quit seeing him when I went into remission. I was hoping someone here was seeing one they liked. I am looking in B'ham. You are right about the inconvenience of driving to B'ham or Atlanta.
I know many web sites for clinics list their staff and often areas of interest. i have seen vasculitis listed along with auto immune disorders listed for some doctors at one clinic I use. Try searching and see if you find any one in your area plus asking clinics who hs experience in this area.
Knowledge is power! Wisdom is using it to make good decisions!
thank you, I will use that information. Great thought, I hadn't thought of it !
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