Hi Audreya - keep the faith! Don't get discouraged! Where there is life there is hope.
My kidneys got hammered for 2 years and I was totally untreated. By the time the docs figured out what was wrong they told me I probably wouldn't make it.
That was in 2000.
I've had a few "You're not gonna make it." talks since then. Yet here I type. I was told to keep the faith. Don't give up.
Carrsville, VA is not that far from Raleigh / Durham or even Maryland and D.C. - If the doc said "Catastrophic Kidney Injury" he may have good reason BUT I would get a second opinion.
There are well known experts in wegeners nearby. I drove 4 hours to get a second opinion in 2000, which was worth it.
Hope this helps.
Prayers to you and your husband.
Best wishes,
Tom
Best wishes,
Tom
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2 years untreated. Dx w/ biopsy - 2000
Tx Plan:
NUTRITION
RESTORATIVE SLEEP
RAISE ANABOLISM
REDUCE ALL INT / EXT STRESSORS
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