My 12-year-old has Wegener's and I'm wondering if anyone knows of a pediatric rhuemotologist with a lot of experience in Wegener's? I live in Kalamazoo, MI and I can drive 5 or 6 hours if I have to.

I know Cleveland Clinic has experts in Vascalitis diseases, but are there any pediatric rhuemotologist there with lots of GPA experience?

I've already called the Vascalitis Foundation and they couldn't find s good fit for us.

Thank you all so much!


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