Hi Weg fam,
So my face (Cheeks area mostly) has been feeling weird for 2-3 weeks. ~ Sort of numb and tight. I figured it was from the prednisone. (Though it didn't feel like that at higher doses of pred. )
Let me add that I was tapered from 60 to 40 (stayed at 40 for a month) and then (thankfully) more gradually tapered from 40-20 by 5 mg increments weekly. I had some slightly higher sed and crp labs and some symptoms returning and my rheumy popped me back up to 30 mg pred. My symptoms have Not diminished since upping the prednisone on Sat morning. If it was Weg GPA activity wouldn't the prednisone help relieve the symptoms? So I was thinking an ear infection might explain the ear pain and increased inflammation markers.
I hadn't thought much of the weird face/cheeks sensation and then today I had a muscle contract just below my mouth/ lip area for a moment. Sort of like the feet or hand cramps I occasionally get (which I put down to a side effect from pred and needing an extra calcium/ vit d supplement)
I don't know much about neuropathy but am now wondering if the cheeks numbness (that's not exactly the right word) could be neuropathy?
Any thoughts?
I'm going to boston this week to see rheumy and more labs are being run - just thought I'd ask you experts as well.
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