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Poll: Rtx efficiency after long term use

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Thread: Rtx efficiency - long time use - Poll

  1. #1
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    Default Rtx efficiency - long time use - Poll

    Readers who are not members, pay attention:
    you can vote. please do. Thank you ♡
    ~☆~☆~☆~☆~☆~☆~☆~☆~☆~☆

    For those who are on rtx:

    Do you find that over time, rtx loses its efficiency, or is it as good as it was in the beginning ?

    For members: Please write in the comments how many years do you have wg, how much time do you get rtx, and how many treatments did you get so far.

    Thanks ♡♡♡

    P.s. you "count" as a treatment the number of rounds. We all get it in 2-4 IV with one week or two weeks intervals - count it as one treatment.

    P.s. 2. If rtx didnt work for you, please dont vote.
    Last edited by Alysia; 10-28-2016 at 03:08 AM. Reason: Readers who are not members can now vote as well ☆
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  2. #2
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    I have wg for 8 years (since dx).
    On rtx 4 years.
    So far 8 treatments. (Every 6 months)
    I don't find that it loses its efficiency.
    Last edited by Alysia; 10-22-2016 at 06:36 PM.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  3. #3
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    I've never had it so I can't answer, but I am very interested in the outcome of the responses
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  4. #4
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    my son has wg since 7 years, on rtx for about 3 years twice for remission induction for a flare and once for maintenace. further, the planned cycle is once in 6 months for maintenace for about two years. so far it has worked well

  5. #5
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    I was dx'd 6 years ago
    I have been on RTX for 4 years
    I have had 9 rounds of RTX
    It is the only treatment that works for me
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  6. #6
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    I have WG for 2.5 months (since dx 8/1/16. Symptoms started 5/1/16)
    On Ritux 2.5 months almost.
    So far 1 treatment. (Next is 3.5 months after last tx Dec. Plan after that is every 6 months per doc)
    So far, so good.

  7. #7
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    Quote Originally Posted by Jaha View Post
    It is the only treatment that works for me
    For me as well.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  8. #8
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    I was diagnosed 4.5 years ago. Treated with Methotrexate for 18 months without much success.
    Rituximab finally got me into remission I have had 2 series of the 4 week infusions and get a booster infusion once every 4 months.
    I have to say that it seems to work pretty good for me

  9. #9
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    Three years for me and so far, so good...
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  10. #10
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    Diagnosed with Wegs in March 2015. Originally took cyclophosphamide & steroids for 6 months, but got critically ill from it. Imuran next, had extreme nausea & stopped after 6 weeks. Got Rituxan in August 2016; it has not helped me at ALL & I've been very ill ever since. I'm not sure what my next option is as far as drugs go, but I'm supposed to have another round of Rituxan in 4 months. I haven't been in remission yet.

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