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Thread: Dr Hellmann at JHU

  1. #21
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    Hi. I think your last post came to wrong address, but cats are sitting here wondering why my smile is from ear to ear. What a wonderfully encouraging scriptum!

  2. #22
    Doug Guest

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    Quote Originally Posted by elephant View Post
    Was your doctor sleeping? So glad your going to the Weg Specialist! My alarm bells are going off!!! A good doctor would understand that you want a second opinion and not question you over and over. Stay well!
    Exactly. One time I questioned one of my doctors, and, without drama or any indication it would offend him, he said, "Would you like a second opinion?" As it turned out, his opinion was based of sound reasoning and consultation with the very doctors I might have had the second opinion from anyway. You can see any doctor you feel can help you, and most doctors will even suggest possibilities for a second opinion, with you making the final choice. Onatreetop, you did the right thing at the right time. I also wonder about the additional catscans for the same concern Phil brings up. I hope you search for a second, informed opinion provides you and your doctor access to that greater knowledge and understanding of how to treat WG, specifically your case. The Cytoxan dosage in particular should come up with the specialist yoiu arte to see, though, by now, I think enough of us have expressed concern that you will bring it up!
    Last edited by Doug; 01-15-2010 at 01:31 AM.

  3. #23
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    I am going with lists and reports and all my ammo. I am going to talk to them about everything .The appointment slot is an 1 1/2 hours and I will be the One talking most of the time I am sure. waiting for the last test results from this week still.

  4. #24
    Doug Guest

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    Good for you! Before long, you will join us naggers as a full-fledged know-it-all, too~! Ha! Seriously, I hope all goes well with you appointment and you start to get control over this dang disease. You doctor will be very pleased to have a patient with her homework done, and you will leave the doctor's with a greater sense that you got the answers you need. I repeat: Good for you, onatreetop!

  5. #25
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    I second that! I know I know you will do great talking with those docs and asking them the right questions! You go girl...go ...girl ....goooo!

  6. #26
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    Thanks so much! I can't wait! I feel like a fighter syking up for the big fight dancing in the corner getting all jumpy!!!! Not a pretty picture am afraid!!

  7. #27
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    LOL-- it's the pred. Best of luck to you, Onatreetop. You'll be fine.

  8. #28
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    I replied at " My sister thread" sorry. I went and was very impressed the dr. did the whole eval. himself no fellows or anyone. 1 and 1/2 hours with him . So worth the 3 hours to get there and another 3 back. Almost 400 miles for me. He read everything out loud asked so many questions and asked for a week to look at all the scans and test films and will give me his recommedations and or request more testing there. it went very well and he was very calm and polite and a pleasure really. Kim was stressed and told me when I met her that she was training someone to take her place and seemed very upset. Did I mention that he , The DR. gave me his cell phone number too in case of an emergancy like the ER visit again. I found a keeper!!!! He also asked me to email him with any questions or more info.. WOW!!!!!!!! Three states later!!!!! A really good Man!!!

  9. #29
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    Again, so happy for you! Feel that you are in great hands! Yahoo!

  10. #30
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    Thanks I do too. Got a copy of my last labs and am not sure how I should be feeling about them. So I faxed them to Dr. Killmann and my Primary Doc. They were ordered by Soloway but He hasnt called me back with the results yet. So I guess I get to wait and see who calls first???? Maybe they all will???

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