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I was on 1000 mg steroids in infusion form for three days initially, before reducing to 100 then 50, then slow reductions over 6 months down to 10. I got as low as 7 mg but had a flare so now back on 10 mg and coping. Had 9 months of cyclophosphamide (tablet form) and now on mtx (20 mg). My lungs were the worst affected and still having lung and breathing difficulties. Fortunately I was caught early so damage was not as bad as it could have been.
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