My Spouse has Wegeners

[JRHauserman-Veskerna]

Thank you Jolanta.

[Doug]

Hello, JRH-V. Welcome to the forum! I'm pleased for your husband that you've decided to join him at appointments. The family, as he indicated when he gave you the option to opt out of marriage, definitely is part of the picture. An informed family is the best support a weggie can hope to have! Also, as you've already determined on your own, knowledge helps you allay fears, be prepared for the future whatever may come. Your husband had a relatively easy move into remission, for which you both can feel blessed, but one thing you need to avoid is subtle denial. If things are relatively easy, there is a good chance of missing important changes in his health that should set off bells and fireworks that he should see his rheumatologist (was that the specialist in WG he has?) as soon as possible or faster! Spend some time with the material in this Vasculitis Foundation website, and you will be reasonably well-informed about those things you and your husband both need to know about WG and all the issues surrounding it.

http://vasculitisfoundation.org/