I was on the Ritazeram Tril but cos of my flare i'm now off, which sucks. I really liked doing the trial. They're still going to follow me as like a side note i guess haha.
Sorry to hear that you will be needing Dialysis or a transplant, thats a rough ride.
Originally Posted by
gilders
I am currently on rtx with infusion every 4th month (as per Ritazarem trial protocol). I was very ill after my last infusion, but believe it was a bug/virus that I caught rather than a reaction to rtx.
Unfortunately my kidney function has declined to the point where I need a transplant or dialysis whilst on rtx.
I also worry about long term side effects and the possibility that your body may "get used" to it and it no longer works.
"I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps". Jack
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