User Tag List

Likes Likes:  3
Page 6 of 6 FirstFirst ... 456
Results 51 to 55 of 55

Thread: Rituxin - C19 and C20 and length of B cell suppresion

  1. #51
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    166
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Rituxin - C19 and C20 and length of B cell suppresion

    It would be easy if everything about this disease was in black and white, but its not unfortunately, I have been medication free for 10 months, luckily for me I have had monthly tests, and noticed that my PR3 was on the rise, went back on aza and have brought the numbers back down a bit, but still a way to go before the level is back to where it was, but I tried!! I hope you get back to where you were before soon, and keep up the info on this thread, as it is very informative.

    Best of luck.
    Regards Woz...

  2. #52
    Join Date
    Nov 2015
    Posts
    352
    Post Thanks / Like
    Mentioned
    4 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Rituxin - C19 and C20 and length of B cell suppresion

    Thanks Woz. I thought it was odd that when my PR 3 went up the second time the ANCA was negative - did that happen to you or was your ANCA positive also? Have you ever had to use Rituxin?

  3. #53
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    166
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Rituxin - C19 and C20 and length of B cell suppresion

    I have always had a positive ANCA, and my PR3 reading was 4, anything under 2 was negative, the scale in Australia is a little different that everywhere else, and I cant go on Rituxin untill I flare, or pay a lot for it!!!!

  4. #54
    Join Date
    Nov 2015
    Posts
    352
    Post Thanks / Like
    Mentioned
    4 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Rituxin - C19 and C20 and length of B cell suppresion

    I have read where folks say the manufacturer has some sort of program to help folks with payment of the Rituxin

    Well I certainly hope you don’t flare! At one point my insurance wanted me to switch from Rituxin to Cytoxan but the Hospital I was getting the Rituxin infusion and my RA said nope and they have been paying for it thank goodness.

    If the ANCA is positive my understanding is that the disease could well be causing damage? Isn’t that reason enough for them to cover the cost. I read what Rituxin costs to make and the markup to the people who need the med and it is ridiculous. Like a few hundred to manufacture with the end cost to the consumer over ten thousand - this was in the US I believe.

  5. #55
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    166
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Rituxin - C19 and C20 and length of B cell suppresion

    In Australia, if you are diagnosed with wegs, they treat you with Rituxin for most cases, this practice has been around for a year or so , i think it costs around $30 a treatment, and this is available to anyone, so my rheumy informed me, but for someone who has it already, they have to have a flare to be eligible to receive Rituxin at this price, I was close to being eligible as my Pr3 jumped to 51, from 4, but my inflammation markers were normal, and if there is no inflammation, no flare (so I'm to believe). My ruemy retired in December, she was just fantastic, and without her help, I wouldn't have the health I have now, hopefully my new rheumy can keep me on the right track.

    Thanks for sharing and caring, keep fighting and most of all keep writing!

    Regards Woz...

  6. Likes Alysia, Keith liked this post
Page 6 of 6 FirstFirst ... 456

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •