Originally Posted by
WG mom
It's been a while since I have logged in. My daughter has been progressing well over the past year, is down to 6 mg of prednisone . Her last rituxan tx was about 9 months ago. We were all feeling relieved and the docs were hopeful she may be moving toward remission - even contemplating the rhinoplasty surgery in late fall.
Then about 10 days ago she began having sustained gastrointestinal problems. Not feeling well at all. Her doc referred her to a specialist who wants her ( at age 27) to have a colonoscopy to rule out Crohn's Disease. She will also have an endoscopy at the same time due to concerns about an ulcer. The doc said these often occur in WGPA patients.
I did a search and found minimal information.
Does anyone have any info on this? I'm hoping, obviously, that it will turn out to be just a stomach virus and I'm glad her docs are thorough, but geez.... This would be a devastating step backward, especially since she was feeling so optimistic for the first time since her diagnosis over four years ago.
Thanks, in advance, for support and advice.
Wegs can attack the colon and the symptoms might be very similar to Crohn's disease. Crohn's disease is also another AI disease and many of us have more than one AI disease so that is also very possible. Treatment for both might also over lap a bit so hope her condition improves soon.
Knowledge is power! Wisdom is using it to make good decisions!
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