Best Treatment/Dr?

[NikkiNicole]

The husband and I tossed around the idea of moving while we were on vacation. We are both starting to hate California.
Where is the BEST hospital/doctors? I know anywhere near a Mayo Clinic but anywhere else? That was one of his criteria for moving. It had to be somewhere near a vasculitis specialist.
Thoughts???

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[Dirty Don]

Since you're already 'north', Portland Oregon has a new vasculitis center at OHSU...just a thought. Keep at it kiddo.

[darl-p]

To Nikki:
I think in your prior post you mentioned that you are a Kaiser patient. Yes .. OHSU has a new Vasculitis Center , BUT when I asked Kaiser to refer me there, I was told that they (Kaiser) feel they can do as well for me as OHSU. Kaiser has done very well for me over the past 8 Wegeners years. They are leaving a few doubts in my mind currently. They do respond to requests for second opinions from with-in their own system. If you came to Portland then I would know that they are treating at least two Wegeners patients.

[NikkiNicole]

To Nikki:
I think in your prior post you mentioned that you are a Kaiser patient. Yes .. OHSU has a new Vasculitis Center , BUT when I asked Kaiser to refer me there, I was told that they (Kaiser) feel they can do as well for me as OHSU. Kaiser has done very well for me over the past 8 Wegeners years. They are leaving a few doubts in my mind currently. They do respond to requests for second opinions from with-in their own system. If you came to Portland then I would know that they are treating at least two Wegeners patients.

Kaiser was a major struggle for a diagnosis and even now ... When I have a simple issue u related (appendicitis, common cold) the docs I see when my GP is out don't know what Wegs is. Or when I've ended up in ER in agony I get that "you're not sick, you must be seeking pain meds" look.
I have a good rheumy now that she's on board with RTX. We ran out of less toxic options.
It would really depend on what my employer would provide wherever I end up.
My first choice is OR. But, who knows?

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[darl-p]

They are always short handed at the 911 Center. Just saying.

[mishb]

There is always Melbourne Australia

Sorry, I can't offer any other places so I just wanted to say that I am so happy that your other half has put you and a vasculitis hospital at the top of the list.

[annekat]

There are some good vasculitis docs in the Seattle area, but I know someone who travels from there to Portland for her care at OHSU, because she really feels in good hands with the doctors there. And there is wine country in both Oregon and Washington. I think you would enjoy the climate in Oregon, especially the mid-to-southern part, and it would not be radically different from northern California. There are enough smaller cities that would likely have jobs in your field. Just off the top of my head, having not passed through Oregon for many years.

[Debbie C]

Nikki, even though I think Cleveland Clinic is great... I would not want to live there. I am sure you would have no problem finding a job, maybe even if it isn't for 911. The less stress the better,maybe look into a career change plus the cost of living in Cali. is probably a lot higher then anywhere else. Good luck with your search

[NikkiNicole]

Oregon (especially the Portland area) was a place we were talking about. I will definitely check that out.

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[MikeG-2012]

Cleveland, OH?

John Hopkins is in PA, right?