Finally getting off Preds

[Rose Cozzette]

Rose one day at a time. You will slowly get off prednisone...it may take awhile.

yeah, I know. the cellcept is making my head feel woozy now, dont like that. but the good news is that my stomach isnt much bothered by the increase. and started having spasms in my back, dont know what is causing that. heat is helping it. i know, one day at a time.

[freakyschizogirl]

well typical i guess. keep on them as you feel you need to, ask questions until they get used to the fact that you expect answers. they always assume you are a typical pt. and dont want to know. of course as yu well know, thereis nothing typical abt us weggies!

I know that i caught out my chest consultant. He was talking about my condition and he was surprised how much i knew...especially when i asked what my PR3 was. And when i told him i wanted a referral to Addenbrooks he said no problem just need to find out the name of a consultant. I said i already know who i want and this is his name, he was so shocked! He paused to take in what i had said. So funny

[Rose Cozzette]

I know that i caught out my chest consultant. He was talking about my condition and he was surprised how much i knew...especially when i asked what my PR3 was. And when i told him i wanted a referral to Addenbrooks he said no problem just need to find out the name of a consultant. I said i already know who i want and this is his name, he was so shocked! He paused to take in what i had said. So funny

good for you! keep it up...

[DEE]

Well done Rose i think been a weggie makes us more determined keep up the good work

[Hammy8241]

I know that i caught out my chest consultant. He was talking about my condition and he was surprised how much i knew...especially when i asked what my PR3 was. And when i told him i wanted a referral to Addenbrooks he said no problem just need to find out the name of a consultant. I said i already know who i want and this is his name, he was so shocked! He paused to take in what i had said. So funny

See what happens when you are a member of this forum......... knowledge is king...or queen........freaky or wot!!

[elephant]

I noticed some docs don't like the fact we are knowledgeable....had a experience with one other doc recently.....he cut me off because I think I knew more than him...hee, hee, hee!

[DEE]

Good one Elephant

[Sangye]

Great job, Freaky. I admire how much you've learned in such a short time.

[Geoff]

Nice one Sam, hope you get the attention and treatment you deserve! See you there one day?

[Rose Cozzette]

I noticed some docs don't like the fact we are knowledgeable....had a experience with one other doc recently.....he cut me off because I think I knew more than him...hee, hee, hee!

ooweemama, I love that we are not defeated not only by this illness but not by the medical staff either. everybody together now-hut hut hut... who knows, we may very influential in changing how pts. are treated from now on. after all, we didnt get this for no reason, we are to teach others.