Finally getting off Preds

[pberggren1]

Brilliant and Witty!!! What next?

I didn't know that about naturopaths Sangye. Maybe I will see one here in town. I started back on the Fosamax in September because my GP said the bone scan I had done 2 weeks earlier was low on the normal side. I know that some people cant take drugs like that. I know you have an issue with them. Could you please restate that and fill me in a little more about these drugs and what a naturopath might be able to do about bone density.

[Sangye]

Phil, did you search for the thread I mentioned (about bisphosphonates)?

[pberggren1]

NO. But I will now. Thanks Sangye.

[Rose Cozzette]

A referral to an ENT consultant could have resulted in the same treatment that both I and Doug received from them - misdiagnosis and a trip to Death's door!

I hear youtoI also went to ENT at national Jewish Ctr. and he blew me off, did put me on decadron which made me pychotic. It wasnt until i had to go to ER with bleeding bowels and the doc on call, my angel, who knw it was serious and consulted with my now rheumy doc, that i got diagnosed. am 9 mos. post and still weak. also cant take mthotrexate nor the imuran so waiting to see what is next. still on 20 mg of pred and cant wait to decrease it. many side affects. ugh...

[elephant]

Have the mentioned Cellcept, that is another drug to suppress WG.

[Terri]

Well Rose,
I for one believe there are angels among us.
Thank goodness you had one in the ER or who knows where you would be.
Hope you find your new "normal" soon. You will. Just don't give up hope.

[Rose Cozzette]

Have the mentioned Cellcept, that is another drug to suppress WG.

I have not heard of it but will check it out. thank you. would you share your history with me? I am new to this and feel so isolated. :{

[Rose Cozzette]

Well Rose,
I for one believe there are angels among us.
Thank goodness you had one in the ER or who knows where you would be.
Hope you find your new "normal" soon. You will. Just don't give up hope.

thanks, it sure is a long process. would you share your history with me? i feel like i am so not me now, dont know who i am but is sure different. i am a fighter, is just so on going...

[moyan]

Hi Rose. This is like a big family! Click on any thread under new posts for a starter and you will not feel isolated any more. And welcome, moyan

[JanW]

Cellcept was originally developed as an anti-rejection for organ transplant patients, but has gained widespread use among autoimmune disease patients as a immunosuppressant. I too cannot take mtx, so am wondering if this drug may be next for me. Has anyone spoken to you about rituxan, which was recently (as in the last six months), proven as effective at cytoxin for the treatment of WG? Often insurers require you to fail on other drugs, which it appears you already have.