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Thread: Just an update

  1. #11
    Join Date
    Oct 2010
    Location
    Ohio
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    Victor, Good for you losing a great deal of weight, which is so hard to do taking preds. and not feeling well for so long.This disease tends to give some of us more than we can handle at times. I wish you all the best with your self discipline journey and continued weight loss. I am also, trying to work on the same thing, self discipline. Please take care of yourself.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  2. #12
    Join Date
    Feb 2014
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    Pennsylvania, USA
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    Victor, you must be so proud of your accomplishment! If not, you should be! Also wanted to comment on your avatar, I recognize a familiar face there in Dr. Merkel. Is that a painting of him? Or you? I would love to know more!
    Diagnosed October 2012

  3. #13
    Join Date
    Aug 2016
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    Great job with the weight loss, I believe you can get through it with little to no weight gain.
    Stay positive and my thoughts are with you Victor.

  4. #14
    Join Date
    Aug 2016
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    Southern NH
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    Victor, I just saw your YouTube vasculitis video that you made with your wife! Great job! 👍👍 you and your wife are a cute couple. 💕

  5. #15
    Join Date
    Jun 2012
    Location
    Stafford VA
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    Thanks all. Had the last of my 4 rituximab infusions yesterday and started the prednisone taper. Down to 40mg daily today and should be completely off prednisone by Jan. Plan is to continue with an infusion every 4 months to maintain remission.

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