Has anyone ever had a flair when their SED rate and C Reactive Protein were normal range? Thanks in advance. Lisa
Has anyone ever had a flair when their SED rate and C Reactive Protein were normal range? Thanks in advance. Lisa
ANCAs are often the least reliable indicator. Another CRP and ESR are better indicators if there is inflammation going on. If so then the ANCA might help sort out why along with CBC since infections can also cause Wegs to increase our residual symptoms but never forget we can also have other events going on besides Wegs. Like our departed guru Jack often said, "just because you have Wegs, doesn't mean you can't have some thing else too"
Knowledge is power! Wisdom is using it to make good decisions!
Hi Lisa, I had at least 2 flares with normal CRP and ESR. Also WG smoldering without indications in labs. Only Pr3 positive. My wg dr. Always says to look at the whole picture: not only labs but mostly symptoms.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Funny - I have the opposite. My CRP is creeping up but no real consistent symptoms. CANCA which was positive initially and then turned negative back in Feb is still negative. Had lab work repeated- increased prednisone a bit (was thrilled to be down to 5mg) and will have labs repeated again
I was never P or C Anca positive. I think relying on PR3, CRP, Sed rate and especially Creatinine is imperative. Right now my PR3 and CRP are a little high but I am not going back on Prednisone, unless absolutely necessary. I will put up with some discomfort. My WG was in lungs only so far.
Dale
Dx Aug, 2009 Remission June 2010 until 8/1/2014
I'm not an expert, but I thought ANCA was only a diagnostic indicator, not a tool for monitoring disease activity. My docs have never run it again since the initial positive C-ANCA and PR3 several years ago. My normal labs to check for disease status are ESR, CRP, CBC and CMP.
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