User Tag List

Likes Likes:  18
Page 9 of 9 FirstFirst ... 789
Results 81 to 85 of 85

Thread: Vancouver, BC, Canada?

  1. #81
    Join Date
    Aug 2017
    Location
    Surrey BC
    Posts
    77
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I live in Surrey BC. Is there anyone in my area? Would love to chat

  2. Likes Alysia liked this post
  3. #82
    Join Date
    May 2014
    Location
    Delta, BC
    Posts
    578
    Post Thanks / Like
    Mentioned
    4 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Susan, I'm in Ladner and replied to your pm. Whereabouts in surrey are you? A close friend of mine is in south surrey. I'm away right now and will be in touch in more detail when I'm able. In the meantime, please ask for a referral to a Vasculitis doc. There are some great ones in Vancouver--Dr. Natasha Dehghan runs a Vasculitis clinic at Mary pack Arthritis centre after doing a fellowship in Vasculitis. I believe she also has a private practice. i have seen her on occasion, but my regular rheumatologist, Dr. Kur is also good and starting me on rituximab next week. There's also a really good doc in New West who has helped members of the support group. (There's a local support group through the Vasculitis foundation of Canada. I'm not sure how active it is as I haven't heard from them in some time.) His name is escaping me but if you Google rheumatologists or wegeners docs in new west, he's the guy with all the amazing recommendations. Many local weggies credit him with saving their lives. If you're not yet being treated, consider it urgent to get to a good wegs doctor. I will be in touch again soon. Hope you're doing okay. I don't know much about your disease or history yet but query whether COPD could have been a misdiagnosis when it was actually wegeners all along?

  4. Likes Alysia, marta liked this post
  5. #83
    Join Date
    Jul 2010
    Location
    Jasper, Alberta, Canada
    Posts
    1,158
    Post Thanks / Like
    Mentioned
    5 Post(s)
    Tagged
    0 Thread(s)

    Default

    Everything Lisa said, I second.
    Great advice.
    Great info on docs.
    Great lady.
    With someone like that in your neighbourhood Susan, you will do great.
    This group (on here) saved my life by forcing me to look for a Vasculitis specialist. I was sick and tired and it seemed like an insurmountable task at the time, but I did, and it was the best thing I ever did. The best advice I ever got. The best advice I ever followed.
    This one single piece of advice was the most important and valuable advice I ever got.

    Best of luck.
    It's always great when you have other Weggies backing you up.

  6. Likes Pete, LisaT, Alysia liked this post
  7. #84
    Join Date
    May 2014
    Location
    Delta, BC
    Posts
    578
    Post Thanks / Like
    Mentioned
    4 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks, Marta! I have a ton of admiration for you as well. I'm sorry I've been AWOL for so long. Phil's passing made this a difficult place for me to be for a while, and then Life just got crazy and I figured I'd hear any major news on fb. I now realize I need more than the major news. I also feel like I should support new members like you all supported me. So I'm glad Susan reached out and that other members let me know she needed a local contact. It's nice to be back here. I'll have to catch up. Maybe I'll use my infusion time on Tuesday to read all the recent posts and threads.

    Jolanta, Susan, anyone else in the Lower Mainland BC area: Woukd you be interested in meeting up for an informal support group/chat at some point this fall? Just coffee (or wine) and visiting with others going through similar stuff would be awesome. I know it can be tricky to find a time at which everyone who wants to come feels well enough to make it, at the same time. I've often wished for a local friend who really gets it. I am fortunate to have an amazing bff who deals with navigating the world with very little vision (legally blind but has a fraction of vision and compensates for what's missing so most would never know). She is hugely empathetic and understanding, and gets it as much as anyone possibly can, other than someone going through the same (or almost the same; every Weggie seems to have different symptoms and story, but we're similar in the inconsistencies as well). Anyways, let me know. This coming week I'm starting RTX while my kids start school. Maybe mid-September we can get together a small group of locals. I can ask the other mom I know in Ladner if she's interested as well. I thought I'd post here so anyone else looking for a group would find us.

    There is a local chapter of the vasculitis foundation canada but I've heard nothing from them for many months. I'm afraid that maybe the woman who runs it and plans the meetings may not be feeling well. If I do get an email or invite, I'll share it here. If they're active I would imagine they'd plan something in the Fall.
    Just when the caterpillar thought the world was over, she became a butterfly.
    - English proverb.

  8. Likes Pete, Alysia, mishb liked this post
  9. #85
    Join Date
    Aug 2017
    Location
    Surrey BC
    Posts
    77
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hello

    I am very interested in meeting up for an informal support group in the fall. I live in Surrey near Gateway Sky train station and live in a Co-op. We have a hall here we can use or even my small place or a restaurant. Meeting others with this will really help and I won't feel so alone. Looking forward to it and hope others join us

  10. Likes Alysia, LisaT liked this post
Page 9 of 9 FirstFirst ... 789

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •