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Thread: Vancouver, BC, Canada?

  1. #1
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    Question Vancouver, BC, Canada?

    Any supportgroup or WG doc here in Vancouver?

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    I remember talking to a WG patient by the name of Monika Martens in Kelowna and I think she was the founder of the Okanogan WG support group. As far as any docs go I have no clue. I can get Monika's number if You like.

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  4. #3
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    I certaily would, thanks. Kelowna is just a couple of hours drive.

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    I don't know if these numbers are current. It was about 6 or more years ago I talked to her.

    250-222-3163 or 250-869-0924

    You might want to get a hold of Donna Wall with the Canadian support group.

    877-572-9474 or 519-653-8030

    I think Donna may know of a Wegs specialist in Vancouver area. I heard of Simon Carret in Toronto.

    Jolanta may know of someone as well or even Germaine. There are a few others I cant remember right now that also have WG in BC.

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  7. #5
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    Thanks a billion and while I remember may this year be a good one for you.
    The nurses who tended to my toe gave me a doc who was supposed to be WG spec, but by now I think I know more than he
    Moyan

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    They probably think any rheumatologist is a Wegs specialist. Regular rheumys can handle a lot of autoimmune diseases but not Wegs. We're just too weird.

  9. #7
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    Quote Originally Posted by moyan View Post
    Any supportgroup or WG doc here in Vancouver?
    My last note seemed to disappear, so here it is again maybe. The general contact for the support group in Vancouver is WG Support Metro Vancouver wegener'[email protected] I also have personal email addresses which I don't like to post on line, if this doesn't work. Perhaps Andrew can help us with this.

  10. #8
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    Thanks!! You can call me collect if you want. I have a peculiar telemarketer answering message, so let that go throu. 778 278 3004

  11. #9
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    I always bemoan not having a specialist, i don't think there are any real specialists in Vancouver, only rheumys that treat a few weggies.
    Jolanta

  12. #10
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    Quote Originally Posted by jola57 View Post
    I always bemoan not having a specialist, i don't think there are any real specialists in Vancouver, only rheumys that treat a few weggies.
    Hi Jolanta, Germaine knows about a supportgroup in Vnacouver and that would be a step in the right direction. She gave me an e-mailaddress, but unfortunatly that took me nowhere. Asked her to call me collect. Phil B also gave me a couple of # to people with WG. Still trying them. One is not active any more but the other one might be. Have had a bad month with spinning thoughts
    Hope you are all right.

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