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Thread: Vancouver, BC, Canada?

  1. #61
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    hi moyan,

    i have a rhuemy, Dr Michael Ramsden, in new westminster right across from Royal Columbian Hospital. I have been going to him for 2 yrs now and was diagnosed 1 yr ago today with WG. He has been very good and on top of things with me. I also have a respritory specialtist in surrey, Grant McCormack. both docs are friends and i have been very happy with both of them. My ENT specialist.....well all
    I can say is that I need a new one!

    If you want I can forward the phone#'s for both docs. My WG has been active and I have just finished 4 rounds of RTX and am tapering off the prednisone from 50 mg and am currently at 35 mg.
    My rhuemy has several patients with WG and is associate, I think his wife, also have several WG patients. From what I have seen, he nows about the treatments and gets the ball rolling asap. I was also was on a IVIG (immune globulin) treatment as I had bleeding in my lungs.

    Let me know if I can help in any way.

    thanks. Harvi

  2. #62
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    Harvi, our dear Moyan passed away some time ago. She was a real treasure.

  3. #63
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    thanks sangye. I feel horrible! I wish that I could have done something sooner.

    take care and once again thanks for letting me know.

    harvi
    Harvi

  4. #64
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    Nanaimo, B. C.
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    Hi Jolanta, I haven't been on this group in ages, and it is nice to see the progress everyone seems to be making and nice to see your picture. We now have a support group in Nanaimo. The Next one will be March 10th at 2 pm. It is fairly close to the ferry and I would pick you up and bring you to the group, or send my husband as I might be setting up the room for the meeting. The contact email for our group is [email protected]. I'm not the monitor, but you could ask Jim for my info. We meet every second month on the 2nd saturday of the month.

  5. #65
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    Quote Originally Posted by germaine View Post
    Hi Jolanta, I haven't been on this group in ages, and it is nice to see the progress everyone seems to be making and nice to see your picture. We now have a support group in Nanaimo. The Next one will be March 10th at 2 pm. It is fairly close to the ferry and I would pick you up and bring you to the group, or send my husband as I might be setting up the room for the meeting. The contact email for our group is [email protected]. I'm not the monitor, but you could ask Jim for my info. We meet every second month on the 2nd saturday of the month.
    Hi, Germaine--it is nice to know another Weggie in the area (I am across the border, but can nearly--but not quit-- see Nanaimo)! Can't promise to get to regular social events, but you never know...!

    Al

  6. #66
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    Mission, BC, Canada
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    Hi Germaine, I look forward to meeting with you all in March, it's a date
    Harvi, how were you approved for RTX, my Rheumys says I have to pay for it. It seems my GFR is 35, so there is a bit of a panic that mtx is not working so RTX might be next
    Jolanta

  7. #67
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    Swift Current, Saskatchewan, Canada
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    Jolanta, what is GFR?
    Phil Berggren, dx 2003

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  9. #68
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    Hi Jolanta,
    I see you live in Canada. Maybe this article pertains to you:

    ROCHE | Approval of first-ever medicine for rare blood vessels diseases offers hope for Canadians

  10. #69
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    Hi! My mom was recently diagnosed at 71. I am looking for any support groups, or contact information on specialists in the Vancouver or Okanagan area. I am up in Kamloops, I am finding limited resources so far and dealing with BC Health Care can be taxing.


    Thanks in advance

  11. #70
    Join Date
    Jul 2010
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    Jasper, Alberta, Canada
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    Hi howattzer,

    I saw a post from moyen's thread and my heart skipped a beat.

    I'm sorry for your momma, but the first thing teveryone'll tell you here is to get a doc that gets it, and the team from CanVasc seem to be pretty on top of it. They consult with each other and with specialists at Mayo and CC, so you'd be in good hands. My doc is on there and she's a godsend. InformationCanVasc

    I hope this helps and best of luck. There are a couple of members on here from Vancouver and surrounding area, but they will let themselves known for sure.

    All the very best.

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