Originally Posted by
im so blessed
I spent much time yesterday-hours actually-on this forum trying to get answers to my nagging questions about this subject.
Isn't it great that this forum exists for that? Since there isn't one textbook for our disease, it is nice to have the resources this forum offers.
Originally Posted by
im so blessed
Is rituxan really worth the risk when my flares have all been my stenosis in the last 2 years. I have been weighing this option for almost 2 years and honestly, I'm scared. I don't like the risks. And so we have to decide if its worth going for.
With any medication there are risks, and with the govermental regulations and the potential for lawsuits, drug companies disclose any and every possible side effect on their labels. Have you ever read the prescription leaflets that come with your pills from the pharmacy? YIKES! If I believed that all the bad things that were printed in those leaflets, I wouldn't want to take any of them!
Originally Posted by
im so blessed
We decided to go for it and my first one is tomorrow. I am very nervous. I almost cancelled yesterday after i read a post on here about Dr Lebovics opinion on it. ... I wish i wasn't so scared of this treatment.
First of all, close your eyes (after reading this sentence), take a deep calming breath and breath. It is completely normal to be concerned/afraid/apprehensive about any procedure you've never had done before. When you get there, tell them that you are nervous and concerned. Ask questions, lots of questions, and if they won't answer them, or don't know the answers (within reason) have them get someone who can explain it to you.
After 12 infusions, my level of concern over RTX is very, very low. On almost all 12, I've walked out not knowing that I've had the infusions--other than the wrap or band-aid on my arm. Had the weather not been so crappy on June 3, I would have taken my motorcycle to the clinic the day of the infusion. A couple days after the infusion, I crash--pretty hard. The IV steroids hop me up and make me feel invincible, so I do things that I probably shouldn't, and always over do it the day of and day after. Then, my body revolts and it crashes on me. After a day of crashing, I feel better again.
Fortunately I don't have the stenosis part, so unfortunately I can't give any insight into how it works for that. I think there are others that can help you with those questions and Victor is always around to help folks, as you see here in this thread.
Drink lots of fluids today so that you are plenty hydrated and finding veins is so much easier with a hydrated body.
Good luck tomorrow and I hope it goes as well for you as it does for me.
MikeG-2012
"You never know how strong you are until being strong is the only choice you have"
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