Hi.,
Sorry I'm posting my concern in my introduction. I am not diagnosed yet. I have pANCA.. and various things. I'm being treated as if I have "relapsing polychondritis"- I was on 60 pred due to pain in the bridge of my nose. I've been doing a Neti Pot for a good year. Mostly it is plain "snot"-
I just started Imuran (2nd day)- and was on Methotrexate., but didn't feel well (so just switched)
I tapered pred to 55mg over the weeks (they want me to lower)- and I just started having bloody chunks in the Neti Pot (the past few days 4 -5 )., and tonight almost like a bleeding nose.
I actually am feeling better, tho..
But I'm assuming this bloody chunk & other blood is not good? Or is something cleaning out.. and this is good? It is bright red., but the chunks (a little small but still there..)- are darker.. and some have some dark brown.. a little gross. I am actually deciding not to worry.. but maybe this is bad? Or "active"?
My whole fear has been my nose falling in the whole time., and it is changing., and is sinking in a little.
An expert ENT (Lebovics in NYC).. is the one who suspect RP., and says "definitely a Vasculitis too., but the problem is the Drs haven't diagnosed.. nOT that you DonT have it "- Wegeners was mentioned in my paper work.. It's what I've believed I've had all along since my first blood test in 2012 (pANCA).. when there was no nose involvement.. but only my ankle swelled.. and I had "asthma".. and couldn't get myself up the stairs (because my legs muscles and arms were so weak.. after climbing a Catskill mountain a week or two before)- - It's taken me all this time.. to finally get someone to "listen"- I looked it up myself from the beginning.. and have been "pushing".. because I'm told nothing's wrong from all the local Docs at the beginning. Anyway., That's my introduction so far! Hope I did that right! But.. I'm afraid of this bloody nose. Can you guys advise? Thank you!! =) -Nancy
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