Hi all ! Ive missed you guys. Honestly i got lossed in life i guess. I was without internet for half a year, and then we moved this past march...Anyway i hope your all doing well. As can be. Im not sure when i posted last. But ive had wegeners since 2001. Dxed at age 17. been doing imuran and methotrexate for remission, and adding pred during flares. This seemed to work ok except for the last year and a half. ive gone on and off pred 3 times. I am currently taking 40 mgs again...after haveing worked off of 40 since february. I know, i wonder with u why things arent being managed differently. I lost my dr who had been with me since the beginning. And when another one took over 2 years ago, things changed. Im heading to an appointment this afternoon to discuss rituxan-again. ive never had it, we have only discussed it and i guess it scares me. my main flares have been my tracheal stenosis. People seem to think it might help but it might not. I guess im a sis, and i have kids to raise...any encouragement from you guys ? I know i need to have blood work, get some vaccinations and see that insurance covers it...but this afternoon i have to actually make a decision to go ahead with it. I know the risks are not pretty. But i also know once im on the other side of my first treatment, it will be ok. Just rambling...somewhere that i know im understood. Thanks guys !
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