http://www.rheumatologynews.com/spec...16c2e25ab.html
Good news for those who enjoy a beer now and then....
http://www.rheumatologynews.com/spec...16c2e25ab.html
Good news for those who enjoy a beer now and then....
Hey, now that is good news!
Hey Pete,
Thanks for asking. I'm better and worse at the same time. Had treatment (RTX) on May 30 and June 13, and the WG is improving (the caveatting lesions and granulomas in my lungs are slowly shrinking) however I ended up with pulmonary embolism (or embolus - I guess is the plural). I had crazy crazy leg pain the day after my first treatment, so maybe that's when it happened. Who knows.
I just checked myself out of the hospital this Monday after a four night stay to start treatment for the clots - they wanted to keep me until my o2 sats went above 89% but they haven't made it past that without me sucking some oxygen yet, and I thought it might be an unrealistic expectation not knowing how long I've been hanging out at this rate at. I wanted to do my healing in my home instead of a hospital bed... it's only a few blocks away anyways, so I can go there anytime I need to if the poo hits the fan.
It's all good though because now I know why I've been dragging my butt around like I have and we're dealing with it (medically). With the holes, the granulomas, and the clots in my lungs, there isn't much room for oxygen, but that will sort itself out in no time. Of course there's also the pred wean - ha ha ha... Wegener's Granulomatosis... the gift that keeps on giving. This too shall pass.
Hope all is well in your neck of the woods.
Good to hear from you, Marta! Sounds like you have been having your regular dose of fun. Since there isn't any "get well", I won'd say it, but, instead, hope you get to feeling better.
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
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Thanks for the update, Marta. Hope the improvement continues.
All is well here. Cathy and I got back from 24 days in Europe on June 19. We visited France, Germany, Switzerland, Austria, and Scotland. We had a blast.
Now that we're back in the Eastern time zone as far as body rhythm is concerned, we're settling into our summer routine.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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