Medicinal marijuana?

[boomer]

Does anyone use medicinal marijuana, I have been using it to help with nausea and pain and seems to help. before i was dx i quite smoking drinking and didnt smoke pot. i still dont drink or smoke. Now i feel guilty about smoking pot. i guess my question is am i just being paranoid or should i see about having weed prescribed. I feel silly posting this but i dont know where else to ask

[Jack]

Could turn out to be an interesting thread.

It has never occurred to me to try it for medicinal purposes because in the UK it is illegal, obtained from questionable sources and I don't want to start smoking again. I'm not even sure that it has true medicinal benefits or if it is just the brief high that gives some relief from illness.

[boomer]

I find it helps with nausea more then anything, you maybe right about the benefits but id rather smoke a joint then oxycotton or anything along those lines. Im afraid of addiction but at this stage maybe addiction shouldnt be a concern

[Sangye]

I have no idea about it's medicinal use for nausea in Weggies, but the thought of inhaling any type of smoke with vasculitis just doesn't sound like a good idea to me. It also gives me the heebie-jeebies to think of adding another drug to the mix. I don't think anyone knows how cannibis interacts with Wegs drugs.

If you're having so much pain that you require painkillers, that's a sign of active Wegs. Suppressing that pain without treating the Wegs can be deadly.

[elephant]

Boomer, I agree with everyone above. I truely think your having a WG flare.

[boomer]

Ive talked to most of my med team and they suggested pill for of THC to help me eat and stop puking. And im still being treated for Wegs i just cant stop puking specially in the morning. I didnt like the thought of it myself at first but it does seem to help. Thank you for your insight I will contimplate it some more.

[boomer]

Oh hell i know i am. i just wish i was this intune with my body before i got sick. Now i can tell you almost to the T what my blood sugar is at. The last time i was hospitalixed it was in the 40's they wernt sure how i was walking.

[elephant]

Boomer do you see a Wegeners specialist? I go to Cleveland Clinic in Ohio and they are wonderful. I travel far to see them, but I only have one life to live and want to make sure I am getting the best care so that I can take good care of my young children. Depending on where you live, there are several top notch wegener rhuematoligist you can see in this country. We are here to help. I am concerned about your puking. What other medicines are you taking?

[boomer]

I have an outstanding medical team in Edmonton AB, i have been with the same nephrologist since the beginning and he had been wonderful as far as I am concerned, I never wait in lines at the doc nor do i need an appointment anymore to see my family doctor (helps that she is also my neighbor and the only doctor to take me seriously. I havent taken the cyclophosphimide for months but that may be the cause of my stomach, which i now have a gastrologist for and i have an infection in my stomach and urinary tract causing the sickness. I know im having a flare up because im getting alot of the pain returning but i go to edm Wed. I have a very stressful family situation at the time and that also is a cause of the flare up. I also dont smoke pot often i have a vaporizor that steams the THC instead of burn. As for meds im finally down to 10 mg prednisone, bactrim, diovan, imuran, alendronate, folic acid, pantaloc, lasik, vit d vit b 12 i also have been diabetic since the hi dose prednisone, and take shots once a week for blood count

[elephant]

Boomer, some of the medicines you are on are hard on your stomach. Sorry about you infections. How is your blood sugars doing. Do you test your blood sugars daily? My doctor order me a one touch so that I can test my blood sugars daily when I was on high does of Prednisone. Need to make sure that your blood sugars are controlled since you have an infection, blood sugars can sway high when you have an infection. Like Sangye always says we all need a Wegeners specialist because we are so different and also treatment is always changing. I am glad you are on this site. I have learned so much about my disease and what to expect. I continue to learn... Feel better soon Boomer.