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Thread: We've been published Weggies - Congrats to you/us all

  1. #11
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    Jan 2009
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    Well done Smarta Marta! Even when this crappy disease lashes out at you, you manage to kick it right where it hurts!!

    Big thanks go to Andrew for facilitating this epic study and of course all you wonderful people out there.

    Who knows, this could be just the decisive step in starting that snowball down the mountain to finding a cure.

  2. #12
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    Marta, that's amazing! The survey was one of the first items I looked at on this inspiring site when diagnosed in Jan 2011! Hope you kick this flare soon! x

  3. #13
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    Well done Marta, very proud of you. I hope your experience with RTX is as good as mine? I have had 3 flares, each treated with RTX which has worked quickly and effectively. The last was now about 18 months ago - still on MTX for maintenance but no Pred. The best it has been in almost 7 years since I was first diagnosed!
    Diagnosed July 2009

  4. #14
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    Thanks you all.

    It's pretty cool what we can do together. That's the moral of this post.
    We are insanely strong and powerful when we stand together.

    As for the flare... it's all good. Ridden this rodeo ride before. I know the drill (although the exponential pred expansion is always a surprise in the mirror, whether you've been there before or not, but I'm taking photos every couple/few days and will make a time lapse video of the expansion/shrinkage to help the newly diagnosed know that it DOES IN FACT GO BACK TO NORMAL - ha ha, you know me, gotta make lemonade somehow.)

    Just got approved for the RTX yesterday and the dates are set. May 30, and June 13, and then back on the road to normal. RTX has worked great for me as well - had it twice (2011, and 2012) and have been great ever since until this bad boy flare came up, but it's all good. It's like final exam time. I get to put into practice all I've learned over the last six years, and I feel strong, empowered, on equal terms with the docs and specialists, and fearless. It's actually quite a cool experience going through it with this state of mind instead of the first one. Might I say, that I am grateful to get to experience the disease in this way? Brian would say no, but I kind of am.

    Thanks to you all for your kind words, and support, and here's to changing the face of publishing and science and healing - TOGETHER.

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