Possible Flare!!! Yikes!!!

[elephant]

Is it in your throat or upper chest?

[pberggren1]

I have been scoped 4 times before. I don't mind it at all. Two of the times I was able to see it on a television screen - kinda neat. I wish I had a home version I could use myself. We both get to enjoy the scope on Friday. Yee Ha!!!!! Does SS only show up with active WG? It is a narrowing of the trachea, is it not?

[jola57]

Hopefully it is just a cold gone wrong Phill. Since my christmas cold I am still coughing and just a few days ago started feeling soreness or actualy pain on swallowing. It has eased off a bit now but is still there. I am watching it so it is not something more. You seem to like the scoping or at least don't mind it so good luck.

[timbo vic aust]

i so much hate that scope it is the worst feeling especially when you have to swallow to get the rest of it down furthur YUK .
no solution to the puddy tat doug ? not sure what you can do their . hope all goes well for you next week phil sounds like their on to it now thats a goosd thing .

[onatreetop]

I have the pleasure of getting my ENT this week to ad to my set of docs and know that because they want the biopsy that I will most likely get the scope? I kitty, oh the kitty!!!! I had decided as soon as we got them to leave dry food out 24/7. They dont get wet food , not yet anyway. They do get meat scraps once in a while but they only bother us when the bowl is empty.We fill it in the morning and again at night. The deposit box and water the same. They have stopped drinking out of the bowl of water lately and prefer the fish tank water( fishy flavor). Back to the ENT. My RA talked to the ER docs the day I went in and said it sounds like virus sinusitus. They agreed to put me on the z pack which he said yesturday was a joke because the batrim is stronger. I told him about the bleedy nose and bloody mucus and has ordered another round of test and a biopsy of my nose. That is easy to get right? kept the meds the same for now.
If the kitty doesnt let up you will have to tolarate the crying for a few night until he figures it out. Like a child that wont stay in bed. You might have to limit his options and go through those offel nights for a little while. Good luck If the 4 I had did that all the doors would be shut and I would let them have run of the main rooms. Mine have kitty cushions only here and there along with scratching post and small toys. They also sleep in pairs more now or all together when its colder.

[elephant]

Onatreetop, I had so many biopies and clean outs, usually they put you under. Or ithey will really numb you and try to get that flexy scope thing in and grab some tissue/mucous.

[Jack]

I had all my sinus washouts and biopsies just using a local anesthetic paste and it was not too bad.

Remember - if it does not respond to antibiotics, it is probably due to Wegener's.

[onatreetop]

okay. that doesnt sound so bad. i have been thinking about the antibiotics and if they dont work as a flare. that is one of your elbows Jack. thank you. The whole bloody nose is new to me. I have noticed foryears that sometimes it is harder to swallow than others but they throat checked out last time.

[pberggren1]

I called my GP this morning and was able to talk with him on the phone. I told him I had slight tightening or narrowing feeling in my airway and was coughing up hard chunks of dark mucus and sometimes soft bright red mucus and wasn't sure if it was from the sinuses or lungs or bronchial area. He said come in right away and I did. He did a ECG and a lung function test and said both were 100% and sent me for a chest x-ray - he said the x-ray may show some streaking in the upper lungs if there is any involvement like that. He also said to start taking 25mg of pred - he doesn't like to keep anyone on that high dose for any longer that absolutely neccessary - it causes too much damage. He said you have to weigh the risks versus benefits. He said if I was having a full blown flare of WG then it would probably be neccessary to stay on at 50mg for a bit longer. I go in to see him again on Thursday morning to see the x-ray results. I find he is a good GP because he knows my history of WG and how serious it can be and he listens to what I have to say and what I want.

[elephant]

Phil how long have you been on 50mg of prednisone? I would not go from 50 mg to 25mg in one day. Are you tapering it? Sangye could help you on this one.
CT scan of the lung would be better. As you know it will show nodules. For some reason the doctors like to do x-ray first than a CT scan.
I truely think your are having a flare. The reason why I think this is that your coughing chunks and blood, and that your feeling tight in the airway. My feeling on this is very strong. I hope I am wrong. I think you GP is good and that he had you come in right away and checked on you, but he is not a WG specialist.