Hi
I haven't been on for a while, but I was hoping for some advice.
My story is this; (I will try to make this as short as possible!). I was first diagnosed with WG when I was 14 years old, had a severe flare up and I was in intensive care for a few weeks, while doctors battled to save me. Anyway, I pulled through, and things began to get back to normal. Back then, I was told that the disease would never return.
However, I continued to go to follow up appoointment for 10 years, to be told I was absolutlely fine. In reality, I was flaring up, and developed a severe tracheal stenosis. Horrible. But then, in 2007, I developed an optic neuritis, which was treated with cylco, then developed a severe allergy to it. Couldn't tolerate methotrexate, or any other chemo, so eventually was given Ritixumab. Had a year of cyclic neutropenia. Then, this year, I had an inflammed vagus nerve, which made my pulse and bp drop, and had severe pain upon swollowing (the doctors still don't know why that is), but steroids helped.
Anyway, had more Ritixumab 3 months ago, but lately i've started to feel ill again. My knee joints, hips, and shoulder joints have become painful again, and i've become a bit more breathless than usual.
I went to my GP and had my bloods done yesterday, esr 17, crp; 14 wc. 5.9 hb, 29.4 .
My question is, isn't 29.4 for haemaglobin a bit high? What could that be about? I thought I might be anemic, but it's gone completely the other way!
Thanks for any information i'd be really grateful.
Gwen xxx
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