Diet & suppliments

[Lucy65]

Hi!
My husband was just recently diagnosed with Wegeners/GPA.
We are wondering if anyone has changed their diets, ie Paleo, Mediterranean, anti-inflammatory and found relief?
Have you added supplements to your diet?
Thanks!

[Pete]

I take the following OTC meds/supplements with my doctors' blessings...

For sinus issues (allergies, congestion, etc.):
10 mg daily phenylephrine
10 mg daily loratidiene (claritin)

For nutrition:
Caltrate 600+D twice daily
Centrum Silver

For inflammation (in addition to 5 mg daily of prednisone):
Curamed 750 mg - Turmeric. This helps with an achy hip that doesn't like to power walk.
I add a tablespoon of coconut oil to my oatmeal each day.

I would ask your doctor before adding any supplements or OTC meds to your treatment regimen. Some supplements may have adverse interactions with prescription meds or may stimulate your immune system.

[Debbie C]

Hi Lucy.. I take a probiotic along with 2000 i.u. Vit D and 1200 Calcium

[Debbie C]

Oh... I also have changed my way of eating as have a few others on here. I don't eat much red meat,usally fish,chicken or I get the turkey off the bone in the deli.I don't eat any processed meat at all and I try to stay away from "white ingredients, like flour,sugar,white spaghetti . I can tell when I eat something that isn't good for me ..my stomach will get bloated !! But both the paleo and the med diet look good. Geoff had mentioned a Sirt food diet that I also want to check out. The cookbook is on Amazon.
Sorry to hear about your hubby,but you have found a great place to get many answers. What kind of involvement does he have ( sinuses,lungs,kidneys ? ) What meds is he on ?

[Lucy65]

We just got the diagnosis on Wednesday after a kidney biopsy.
We don't know if it was caught early or not. Cleveland Clinic Dr was going to try and get the IV infusion of rituxemab done locally.
If not, we will be traveling back there. Currently he is on prednisone and SMZ/TMP.
He's actually doing great! No aches or pains like he was having in July.
- It took a long time for anyone to figure out what was going on, thought it was RA initially.
RA Dr. did the right thing and sent him to a specialist.
Thanks for asking about him.

[Pete]

Hi Lucy,

Where are you guys from? I see Dr Villa Forte at Cleveland and have been able to get my rtx infusions at Ohio State here in Columbus. Good luck!!!

[NatriceRomeo]

I was trying the anti inflammatory diet. To be quite honest with you all.. I was sick of basically eating bark and tuna. I decided to get an allergy test done. I sent in a few strands of hair & was tested for 800 common foods and allergies. It turns out that I am sensitive to preservatives, cocoa bean, pineapple, artichoke and a bunch of other things. So in a sense it?s made my life easier and harder. If anyone was interested I found a coupon for this testing on Groupon.


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