Lost lots of teeth from prednisone

[me2]

Many years ago when I first developed wg my teeth got very loose , gums inflamed and my tongue turned black. With treatment my mouth improved. I hope yours heals up soon with the treatment you are getting. When I was at my worst my doc sent to a dental school to get looked at and get worked on. My insurance does not cover dental and this was less expensive than other alternatives.
I know what it is like to be embarressed by what wg and the meds have done. Hopefully you have family and friends to spend time with. Of course , you have this forum too

[Jax]

THANKS ME2! I'M very fortunate for my family. Especially my husband. He hasn't run for the hills yet since I've been diagnosed. And that is a great option going to a dental college. Insurance doesn't pay for much either here. The ravages of wegeners is very depressing. There are days I don't want to look at myself in the mirror because I don't recognize myself anymore. The mastoiditis in my right ear ate most of the bone that protects the facial nerve and the nerve itself and that's why I'm holding up my face in my avatar pic. Luckily, most of the nerve grew back but it's still noticeable. But I'm so glad and thankful that my nose didn't collapse like many wegeners patients do.and right now in this very moment things are uneventful physically. And I know I gotta take advantage of that and keep riding the positive vibe I'm on. Thanks again ME2

[debra]

Jax, hi... I meant to ask, did you have any pain with youre mouth involvement? I ask because i had none, whatsoever, and this just seems odd... I guess when you think in terms of tissue death, not so odd afterall... Jax i totally get it, not liking mirrors ect, but beauty is within, and although it sounds corney most will come to realize its really true. So in that said, you have nothing to worry about! Support is so important, and God willing, i will be here for a bit... I will be watching this thread, and hope to see you posting through out... Best of luck, again... Me2, nice seeing you and i remember you having mouth involvement as well... Debra...

[me2]

Your husband sounds great. Looking at your avatar I assumed 'Jax' was HIM. It's a nice photo of both of you.
I think if you read here for a while and talk with people you will start to absorb what we call "the new normal". Many of us here have had to adapt to a changed life because of wegener's.
I myself have had the illness for about 37 years. I have written volumes here about my adventures so I won't take up your time with that. The good news is that life goes on.

The old saying "when one door is closed , another is opened" certainly applies. Some times it takes a while to find the other door. That is when it can be a bit depressing. But, having been through many , many things I can say with certainty something new is born from each thing that seems to pass away. Keep on doing whatever it is that is feeding your positive vibe.
Enjoy the fact that things are rather uneventful for you right now. I am doing something like that myself.

Just three days ago I was in the hospital getting trachael dilation for the third time (over several years) and today I did some gardening. Talked to my chickens. Talked to a neighbor.
I had a good day today in part because I have gotten better (not perfect) at taking a day at a time.

We had another beautiful soul in our group named Barbara. I remember that she too found that kids were easier to be around. So, lets hang around more kids.

Right now I am trying to loose prednisone weight too. You are an inspiration and I will think of you this week as I work my program. I love the line from an Anthony Hopkins movie
(make a gender adjustment ) "What one man can do - another man can do" We can do a LOT

[Fran]

Always inspired and impressed by your comments Me2.

Best wishes Fran.

[me2]

Thanks Fran.