Hi Folks,
12 years on, you would think I would be an expert by now, but no, still have queries....
I am supposed to be in chemical remission for the past four years, on 1,5 mg of prednisone and 100mg Imuran.
Had lung involvement, but now just sinus issues and watery eyes to deal with.
I find I need to use neilmed everyday or my sinuses would be unbearable. Surely I would not have to do this if I was indeed in remission. Or is this just a side effect of previous Wegeners involvement. My most recent blood just showed slight inflammation but nothing new there.
Is is something that you just have to live with?
Thanks
Yvonne
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