Doesn't a big Center like Cleveland Clinic have the resources to deal with all these issues and coordinate the care? I would think Mayo Clinic would be another good resource or maybe John Hopkins. If all the specialists are in the same clinic they should be able to coordinate care. Some places have a special person assigned to coordinate care for chronic illnesses. I just found out one of my local clinics (rather large one with branches in dozens of locations) assigned me a chronic illness coordinator and then I got a regular Family Medicine doctor at their place to help me plan and negotiate my care from several specialist doctors at different clinics. It is also easier now since most subscribe to same medical records company and can access records from other facilities without any necessary authorization or paperwork from me. I still request some specific sharing of my info to be sure it comes to their attention and then mention this to whatever doctor I am seeing at the time.
Knowledge is power! Wisdom is using it to make good decisions!
Bookmarks